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About Inform Congenital Heart Disease (InformCHD)
A Patient-Reported Database, Sponsored by Conquering CHD

In collaboration with data expert ArborMetrix, we have built a secure database to collect information directly from people with congenital heart disease. InformCHD is a longitudinal database that will allow us to learn by gathering information over time. All persons with congenital heart disease (or their caregivers), regardless of their age or type of CHD, can participate in learning and research opportunities through InformCHD.

This project is supported in part by:

ArborMetrix advances healthcare through data science. They deliver analytics technology and services that enable data-driven healthcare improvement. Their proven solutions allow for efficient aggregation and deep analysis of healthcare data, and deliver evidence-based insights that improve outcomes, advance research, and demonstrate safety, effectiveness, and value. Learn more at ArborMetrix.com.

Conquering CHD Stories

Sydney Kim

“Sydney has already overcome so many challenges in her young life. I used to worry so much about her future because of how sick she was as a little child. But seeing her now and how much she has grown, I feel that there is no limit to what Sydney can do or achieve. I will always be thankful to Conquering CHD for tirelessly advocating for those with CHD like Sydney.”

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