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About Inform Congenital Heart Disease (InformCHD)
A Patient-Reported Database, Sponsored by Conquering CHD

In collaboration with data expert ArborMetrix, we have built a secure database to collect information directly from people with congenital heart disease. InformCHD is a longitudinal database that will allow us to learn by gathering information over time. All persons with congenital heart disease (or their caregivers), regardless of their age or type of CHD, can participate in learning and research opportunities through InformCHD.

This project is supported in part by:

ArborMetrix advances healthcare through data science. They deliver analytics technology and services that enable data-driven healthcare improvement. Their proven solutions allow for efficient aggregation and deep analysis of healthcare data, and deliver evidence-based insights that improve outcomes, advance research, and demonstrate safety, effectiveness, and value. Learn more at ArborMetrix.com.

Conquering CHD Stories

Luke Toth

Like many newly married couples, we were over the moon to learn we were expecting our first baby!  We vividly remember deciding the entire ride to our ultrasound if we should find out whether we were having a boy or girl. Soon after arriving, we quickly learned that instead of finding out our baby’s gender,...

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