About Inform Congenital Heart Disease (InformCHD)
A Patient-Reported Database, Sponsored by Conquering CHD
In collaboration with data expert ArborMetrix, we have built a secure database to collect information directly from people with congenital heart disease. InformCHD is a longitudinal database that will allow us to learn by gathering information over time. All persons with congenital heart disease (or their caregivers), regardless of their age or type of CHD, can participate in learning and research opportunities through InformCHD.
Current Research Utilizing InformCHD Database
COVID-19 and CHD Study
This study is unique because it collects information directly from people with CHD, of all ages and all types of CHD. Other research that looks at hospital records only identifies those who have become so ill they seek medical treatment as a result of COVID-19. With your help, we can reach adults and children with CHD from across the country with mild, moderate and severe responses to COVID-19, to provide a more complete picture of the impact of COVID-19 on people with CHD.
This project is supported in part by:
ArborMetrix advances healthcare through data science. They deliver analytics technology and services that enable data-driven healthcare improvement. Their proven solutions allow for efficient aggregation and deep analysis of healthcare data, and deliver evidence-based insights that improve outcomes, advance research, and demonstrate safety, effectiveness, and value. Learn more at ArborMetrix.com.
Conquering CHD Stories
Sai’s journey started off with a lot of heartache, stress & worry but his life continues forward with a lot of hope, love, laughter & amazement.Full Story>