There is little understanding of how to prevent heart defects and unfortunately, no cure. Thanks to medical advances, patients with congenital heart defects are living longer, but there is still much work to be done. It is part of our mission to continually support the research necessary to find the best treatments and work towards a cure for CHD. There are over 2 million people in the U.S. living with congenital heart defects, yet research studies are often designed by the scientists themselves. Conquering CHD actively promotes the belief that the patient should be at the center of any research study from beginning to end. We represent the patient voice in research collaboratives and individual research projects. We are committed to research that matters.
Conquering CHD Research Initiatives
This is research that matters to all of us, and it matters right now. What we build today will help for decades to come. The research we do today will be accessible to the entire congenital heart disease community.
Help us do this critical work by making a donation today. Thank you!
Additional Opportunities for Patients & Families
-
Behavior and Self-Control in the Adolescent Patient with CHD
Teenagers (ages 13-19) with CHD are invited to join a study to learn more about behavior and self-control. Participants will complete 5 surveys that ask questions about risk-taking, impulsivity, sleep, and parenting styles and play two computer games. Finish the surveys and get a $20 Amazon e-card, plus a chance to win a $50 Amazon e-card. Scan the QR code on the attached flyer (or email dfuscol@udel.edu) to complete a short and confidential online screening survey.
-
Clinical Trials at National Institutes of Health
National Institutes of Health maintains a library of clinical trials actively recruiting patients. Click here to read more about these studies for congenital heart disease patients across the lifespan.
-
Psychological Stress Survey
This brief, anonymous online survey will help to inform the delivery and prioritization of mental health and support services during and following the COVID-19 outbreak.
-
Study on Cerebrovascular Integrity in Fontan Patients
Teens and adults (13+) with a single ventricle heart disease and have gone through a Fontan completion may be eligible for a research study at Children’s Hospital Los Angeles. Help us understand how Fontan procedure may affect oxygen delivery to the brain. Click here to learn more about our study.
Conquering CHD often collaborates with research centers on studies and surveys. If you are a researcher please submit your request here.