There is little understanding of how to prevent heart defects and unfortunately, no cure. Thanks to medical advances, patients with congenital heart defects are living longer, but there is still much work to be done. It is part of our mission to continually support the research necessary to find the best treatments and work towards a cure for CHD. There are over 2 million people in the U.S. living with congenital heart defects, yet research studies are often designed by the scientists themselves. Conquering CHD actively promotes the belief that the patient should be at the center of any research study from beginning to end. We represent the patient voice in research collaboratives and individual research projects. We are committed to research that matters.
Conquering CHD Research Initiatives
This is research that matters to all of us, and it matters right now. What we build today will help for decades to come. The research we do today will be accessible to the entire congenital heart disease community.
Help us do this critical work by making a donation today. Thank you!
Additional Opportunities for Patients & Families
Behavior and Self-Control in the Adolescent Patient with CHD
Children between the ages of 13 and 19 with Congenital Heart Disease (CHD) are invited to join a research study to learn more about behavior and self-control. To sign up or learn more about the study, email email@example.com.
Clinical Trials at National Institutes of Health
National Institutes of Health maintains a library of clinical trials actively recruiting patients. Click here to read more about these studies for congenital heart disease patients across the lifespan.
Psychological Stress Survey
This brief, anonymous online survey will help to inform the delivery and prioritization of mental health and support services during and following the COVID-19 outbreak.
Social Determinants of Health-Related Quality of Life
If you are the parent of a child under the age of 19 years who has Congenital Heart Disease, Down Syndrome, or both, we invite you to take part in a research project. The purpose of the study is to examine how social determinants of health influence child and caregiver health-related quality of life and family adaptation. The survey takes 30-40 minutes to complete.
Conquering CHD often collaborates with research centers on studies and surveys. If you are a researcher please submit your request here.
Conquering CHD Stories
Taosies was born in January 2010 with Critical Congenital Heart Disease. His anatomical diagnosis is Double Inlet Left Ventricle (DILV) with Transposition of the Great Arteries (TGA), also known as single ventricle anatomy or “half a heart.” There is no repair available for his anatomy, only palliative surgeries to make the most of what his...Full Story>