There is little understanding of how to prevent heart defects and unfortunately, no cure. Thanks to medical advances, patients with congenital heart defects are living longer, but there is still much work to be done. It is part of our mission to continually support the research necessary to find the best treatments and work towards a cure for CHD. There are over 2 million people in the U.S. living with congenital heart defects, yet research studies are often designed by the scientists themselves. Conquering CHD actively promotes the belief that the patient should be at the center of any research study from beginning to end. We represent the patient voice in research collaboratives and individual research projects. We are committed to research that matters.
Conquering CHD Research Initiatives
This is research that matters to all of us, and it matters right now. What we build today will help for decades to come. The research we do today will be accessible to the entire congenital heart disease community.
Help us do this critical work by making a donation today. Thank you!
Additional Opportunities for Patients & Families
Clinical Trials at National Institutes of Health
National Institutes of Health maintains a library of clinical trials actively recruiting patients. Click here to read more about these studies for congenital heart disease patients across the lifespan.
Psychological Stress Survey
This brief, anonymous online survey will help to inform the delivery and prioritization of mental health and support services during and following the COVID-19 outbreak.
Study on Cerebrovascular Integrity in Fontan Patients
Teens and adults (13+) with a single ventricle heart disease and have gone through a Fontan completion may be eligible for a research study at Children’s Hospital Los Angeles. Help us understand how Fontan procedure may affect oxygen delivery to the brain. Click here to learn more about our study.
Understanding Surgical Adheasions - Patient/parent input needed!
We are working on NIH sponsored research to better understand the impact of postsurgical adhesions (AKA internal scarring) on patients, surgeons, and their families. If you have been impacted by postsurgical adhesions, we are interested in hearing your story! If you are interested in learning more email firstname.lastname@example.org
Hearts and Minds Medical Validation Study
Are you the parent of a child aged 6-17 years? Join our study to help us understand how kids and teens feel about health and medicine. Kids and teens will rate pictures related to health and medicine based on their emotions. This is an online study and takes about 20 minutes. Help others kids feel safe and secure when they're in the hospital.
Conquering CHD Stories
“Sydney has already overcome so many challenges in her young life. I used to worry so much about her future because of how sick she was as a little child. But seeing her now and how much she has grown, I feel that there is no limit to what Sydney can do or achieve. I will always be thankful to Conquering CHD for tirelessly advocating for those with CHD like Sydney.”Full Story>