Living with CHD - Adults
Estimates suggest that there are more than 1.4 million adults living with CHD in the U.S. Thanks to improved treatment for congenital heart disease, there are now more adults with CHD than children. However, there is no cure for CHD and adults face unique health and personal challenges as a result. You are not alone.
Top 10 Things to Remember as an Adult
There is no cure for CHD. Even if you are feeling well, it is important to be aware of these key details about your health.
Taboo Subjects Blog Series
This series takes a look at a few of the “taboo” subjects that come up when thinking about life with CHD. Topics include: Tattoos, Career, College, Contraception and other "adult" activities.
Pregnancy and CHD Blog Series
For women and men with congenital heart disease, there are many things to consider when thinking of having children. This series covers pregnancy options as well as stories from several women with different experiences.
Arrhythmias and Cardiac Devices
Complications from surgery, scar tissue left behind, and an underlying disease can bring about arrhythmias in CHD patients and lead to need for a cardiac device.
What Genetic Testing Can Reveal About ACHD
In this webinar, courtesy of Children's Hospital Wisconsin, Medical Geneticist, Dr.Gabrielle Geddes, discusses general genetic concepts, genetic causes of CHD available testing, and reasons one might consider being tested. Watch to learn more about genetics and CHD.
ACHA Clinic Directory
Travel with confidence knowing where the nearest specialty clinic is located.
ACHA Personal Health Passport
Keep your necessary medical information in your purse or pocket by recording it in this booklet.
Eva Burt Edinger
“My CHD went undetected for the first year and a half of my life. After being diagnosed with an Atrial Septal Defect, I underwent open heart surgery, spent several weeks in intensive care, and was not expected to live. Now, as an adult, I have no physical restrictions and I live life to the fullest!...Full Story>