CHD Wise is a virtual educational series designed to answer commonly asked questions from patients and families. Experts in specific CHD-focused areas will provide education for all patients and families, both live and recorded. Live episodes will require registration, which is free to all participants. All episodes will be stored permanently on this webpage.
Ideas and Collaborations
Do you have a topic you’d like to see us cover? Are you an expert willing to collaborate on a future episode? Contact us at firstname.lastname@example.org.
Precision Medicine: The Future of Congenital Heart Disease Care?
Recorded on January 11, 2022, featuring Dr. Joy Lincoln, Director, Cardiovascular Research, The Herma Heart Institute, Children’s Wisconsin; Dr. Michael Mitchell, Chief of Cardiothoracic Surgery, Surgical Director of The Herma Heart Institute, Children's Wisconsin; Dr. Aoy Tomita-Mitchell, Professor in the division of pediatric cardiothoracic surgery; Children's Research Institute, Medical College of Wisconsin; Chris Wolfe, CHD patient and parent to two children with CHD; and Stephanie Wolfe, Spouse of CHD patient and parent to two children with CHD. You can find additional resources at conqueringchd.org/precision-medicine-the-future-of-congenital-heart-disease-care/
Helping Your Child Cope with Their CHD Care: From Clinic Visits, to Procedures, to Hospital Stays
Recorded Live on December 7, 2021, featuring Dr. Peter Wearden of Nemours Children’s Health in Florida and Jenna Read, a Certified Child Life Specialist of Nemours Children’s Health in Delaware. You can find additional resources at conqueringchd.org/chd-care-doesnt-have-to-be-scary/
It’s Never Just the Heart: Promoting Mental Health for Children with CHD and Their Families
Recorded Live on November 2, 2021, featuring Dr. Gul Dadlani of Nemours Children’s Health in Florida, Dr. Erica Sood of Nemours Children’s Health in Delaware, Danielle Wagner – a parent to a child with CHD, and Erin Riegel – a parent to a child with CHD. You can find additional resources at conqueringchd.org/its-never-just-the-heart/
Transparency and Public Reporting: What Is It and Why Does It Matter?
Recorded on October 4, 2021, featuring Dr. Cindy Barrett, Dr. Jim Jaggers, and Dr. Dunbar Ivy, of the Heart Institute at Children's Hospital Colorado, and Mary Kincaid, mother of Jason who is three years post-transplant. You can find additional resources at conqueringchd.org/transparency-and-public-reporting/
Pediatric CHD & COVID-19: Vaccines, Variants, and Very Important Decisions
Recorded Live on September 14, 2021, featuring Dr. Sarah DeFerranti, MD, MPH of Boston Children’s Hospital, Terry Saia, PNP of Boston Children’s Hospital, and Claire Abbott, an ACHD patient, and parent to two children with CHD. You can find additional resources at conqueringchd.org/pediatric-chd-and-covid-19/
Back to School 2021
Recorded on August 3, 2021, featuring Kyle Landry, MEd, of Children's Wisconsin Herma Heart Instititue. You can find all resources and information provided at www.conqueringchd.org/backtoschool2021.
What I Wish I Had Been Told About CHD
Recorded on June 30, 2021, featuring Dr. Anitra Romfh and Dr. Richard Shaw of Stanford Children's Health and Stanford Health Care. Check out the entire collaborative campaign at www.conqueringchd.org/what-i-wish-i-had-been-told
Participating in Research
Recorded on April 28, 2021, featuring Rebeka Acosta, BCPA and Director of Education at Conquering CHD. Learn more about Conquering CHD's public health research program at www.conqueringchd.org/involvement/informchd.
Birth Defection Prevention & Awareness
Recorded on January 27, 2021, featuring Dr. Jennita Reefhuis, PhD, from the CDC's Center for Birth Defections Prevention and Research. Blog post with summary located at www.conqueringchd.org/birth-defect-prevention-awareness.
COVID-19 Vaccines & CHD Town Hall
Recorded on January 20, 2021, featuring a panel of physician experts in Infectious Diseases, Adult Congenital Cardiology, Pediatric Congenital Cardiology, and Congenital Cardiac Surgery. Blog post with summary located at www.conqueringchd.org/covid-vaccines-chd.
Reproductive Healthcare - Contraception, Sex, Genetics, Pregnancy
Recorded on November 19, 2020, featuring presentations and Q&A with Dr. Eric Krieger of UW Medicine/Seattle Children's Hospital, Dr. Ari Cedars of Johns Hopkins Medicine, Dr. Marla Mendelson of Northwestern Medicine, and Ms. Jennifer Weiner of Conquering CHD.
Bereaved Families: What They Want You to Know, Part II
Recorded October 18, 2020, featuring families sharing stories of their loved ones lost to CHD.
Bereaved Families: What They Want You to Know, Part I
Recorded October 12, 2020, featuring families sharing stories of their loved ones lost to CHD.
Breastfeeding an Infant with CHD: It is possible!
Recorded August 25, 2020, featuring a panel of experts from Lurie Children's Hospital Heart Center, and a parent of baby with CHD who successfully breastfed. Blog post with additional resources located at conqueringchd.org/breastfeeding.
Back to School 2020: Kindergarten - College
Recorded July 23, 2020, featuring Kyle Landry, MEd. Blog post with additional resources located at conqueringchd.org/school-during-covid/.
Talking to Patients Across the Lifespan: Building Your Team
Recorded on July 6, 2020, featuring Nicole Dempster, PhD and Lindsay Schwartz, CCLS.
COVID-19 & CHD Town Hall
Recorded on June 16, 2020, featuring a Q&A with Dr. Nicolas Madsen, Dr. Matt Oster, and Dr. Ram Subramanyan. Blog post with additional resources, including ACHD Q&A, located at conqueringchd.org/town-hall-wrap-up/.
Conquering CHD Stories
Carter Fidel Williams
"When we first learned of our son's congenital heart defect, we wanted to ensure that we were equipped to face this challenge. We are very grateful for CCHD, the information and support we received was invaluable as it properly prepared us for this journey." - Shuntae WilliamsFull Story>