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The VAD Life – One ACHDer Shares Her Experience with a Ventricular Assist Device
After an extended hospital stay, Carol was still waiting for a heart. Her care team had a plan to get her home while she waited with the help of a ventricular assist device. Learn more about the device and Carol’s journey on the bridge to transplant. A Ventricular Assist Device, more commonly known as a…
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In the Spirit of Sankofa
Dr. Josephine Isabel-Jones and Dr. Brenda Armstrong paved the way for generations to continue the legacy these women began in an era that tried to hold them back. As Black History Month comes to a close, Dr. Annette Ansong introduces us to these pioneers in the field of Pediatric Cardiology. In the Ghanaian language of…
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Advocacy for Kids: Virtual Conference 2021
Conquering CHD’s annual advocacy conference in Washington, D.C. is virtual in 2021. Junior advocates can access recorded content, as well as printable materials, in lieu of attending the full virtual conference. Advocates ages 13+ are encouraged to attend the full virtual conference with a parent/guardian.
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CHD and Cancer: Is there a connection?
Is there a connection between congenital heart disease and cancer?
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Birth Defect Prevention & Awareness Month
Every January, Centers for Disease Control and Prevention (CDC) hosts National Birth Defects Prevention Month.
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Preventative Care is Essential During a Pandemic
Dr. Rema Merhi of Las Vegas, Nevada co-authors this post, sharing critical reminders for families of pediatric heart patients during the pandemic. While most of us are worried about COVID-19, parents of pediatric CHD patients are definitely worried. In fact, they are so worried, they are refraining from receiving essential preventative medical care during the…
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COVID-19 Vaccines & CHD: Town Hall Wrap-Up
Thank you to the patients and families who participated in our live Town Hall on January 20th, as part of our CHD Wise educational series. Read on for the summary and full video presentation.
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Donate Life Month – The Call
For the month of April, CCHD will be focusing on the theme of National Donate Life Month. In the third post of our series, Kathleen Sheffer, a heart and lung transplant recipient, shares her memory of the harrowing moments that came after the fateful call. I didn’t stress about packing absolutely everything I…
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It’s In Your Hands
Being a heart parent isn’t easy. That’s no news flash. You’ve run the gamut of emotions from scared, to sad, to angry, then rinse and repeat. Oh yeah, and life doesn’t stop and wait for you to get it together either. There are days where you feel like maybe you’re starting to get it together,…
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Wrapping Paper
I have never been good at surprises. Keeping anything a secret is nearly impossible for me. My kids have figured it out, too. If I leave a gift wrapped present out, they quickly begin guessing and if they are even remotely close, I have to run and hide for fear of giving it away. Just…
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