We are Conquering CHD through education, support, research and advocacy. But we are unique in our approach – encompassing the lifespan, encouraging transparency, and meeting families where they are. See just What Makes Us Different.
Click here for a printable version of the What Makes Us Different graphic.
We are Congenital Heart Disease
- Our organization is made up entirely of CHD patients, families, and medical experts
- We have strong relationships with more than 50% of the pediatric cardiac centers across the country
- We reach millions of people every month on our rapidly growing social media platforms
- Our programs and activities encompass the lifespan
We are Conquering CHD Every Day
- Changing the conversation around Transparency and Public Reporting of Hospital Outcomes
- Uniting the community by holding patient-driven, multi-disciplinary stakeholder meetings
- Providing current and reliable resources for CHD patients and families of all ages through our website, including our Guided Questions Tool and Hospital Navigator
- Reaching families where they are through strong grassroots programming, with 10,000 volunteer hours and our growing state chapter program
- Succeeding in challenging Congress, including advocating for $50M in CHD research and data collection at the Centers for Disease Control and Prevention (CDC)
- Contributing to national policy, giving a voice to patients and families, by participating as patient representatives on many national committees and initiatives
Give Knowledge. Give a Voice. Give Hope.
Join us today.
