Congenital Heart Disease is the most common birth defect.
We are Conquering CHD
The Pediatric Congenital Heart Association’s mission is to “Conquer Congenital Heart Disease.”
We are accomplishing this through collaboration with patients, families, providers, and partner organizations to improve quality and outcomes through CHD education, support, research and awareness.
Congenital Heart Disease (CHD) consists of problems with the heart’s structure or the way it works that are present at birth, including related lifelong consequences. Learn more about the most common birth defect.
- 1 in 100 newborns are born with CHD
- 25% of children born with CHD need heart surgery or other interventions to survive
- There is no cure. CHD is a lifelong disease requiring ongoing specialized care
- Fewer than 10% of adults with CHD are receiving recommended care
- #1 cause of birth defect related deaths
- Costs for hospitalizations related to congenital heart disease were more than $6 billion in 2013
- CHDs are 50 times more common than childhood cancer
- Most causes of CHDs are unknown. Only 15-20% of all CHDs are related to known genetic conditions
- Over 85% of babies born with a CHD now live to at least age 18
- CHDs can have lifelong neurodevelopmental and neurocognitive effects
Taosies was born in January 2010 with Critical Congenital Heart Disease. His anatomical diagnosis is Double Inlet Left Ventricle (DILV) with Transposition of the Great Arteries (TGA), also known as single ventricle anatomy or “half a heart.” There is no repair available for his anatomy, only palliative surgeries to make the most of what his...Full Story>