Living with CHD - Children
There is no cure for CHD. As children grow, you may find that you don't have to go to the doctor as often. But, you may start to see differences in how your child with CHD develops, behaves, or learns. These resources can help you know more about these differences and where to get help. Even if your child feels fine, it is important to keep going to the doctor and tell them about any differences you may notice.
Supporting Development in Children with CHD
Children with congenital heart disease (CHD) are exceptionally resilient. After extensive surgeries and hospitalizations, they typically go on to live full, meaningful lives. However, some children with CHD experience developmental and learning differences and benefit from extra help to succeed in school, social relationships, and future employment.
The Importance of Dental Health - a CHPHC Resource
Young children with congenital heart defects (CHD) are at greater risk for tooth decay because their baby teeth may have weak enamel. Learn more about taking care of your child's teeth.
Getting Help at School - a Complete Resource Guide
Loads of great information on navigating a school’s system without a dedicated school liaison. A complete resource list is included at the end of this post for easy reference.
Social Security Disability Benefits - Children
If your child has a congenital heart defect, he or she may be eligible for Social Security disability benefits. The Social Security Administration (SSA) offers monthly financial aid for people of all ages who have serious conditions or illnesses. A CHD will not automatically qualify with a diagnosis alone, but many children with heart problems are eligible for assistance.
A Mother’s Love
"Pregnancy is hard. Having a congenital heart defect (CHD) during pregnancy is even harder." Loryn McGill is a heart warrior and mother. Loryn shares her experience with pregnancy, and discusses the challenges and beauty, of motherhood.Full Story>