Transparency
Conquering CHD is the resounding voice of the congenital heart community. Our voice is strengthened by the involvement of all of those who share our mission - those who share their stories, and advocate on behalf of the people in their lives affected by congenital heart disease. Our efforts in transparency and public reporting of congenital heart disease outcomes are placed front and center at our annual Summit Series, and patients and families are a critical component of these advocacy measures. Read below for more background on transparency and public reporting, and be sure to join us at the next Summit!
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Key Tenets of Transparency
Working together to improve transparency, congenital heart programs, patients and families can improve outcomes and save lives. Congenital heart disease data may be complicated, but sharing information need not be so.
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Making Sense of Congenital Heart Surgery Data
Conquering CHD is committed to empowering patients and families. Patients and families deserve essential information to help make important health care decisions. As this data becomes available it can be very hard to understand. It is our hope that this resource can help.
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Summit Series History
Conquering CHD's Summit Series builds on seven years of collaboration between patients, families, care providers, policymakers, healthcare administrators, and new media, with the ultimate goal of improving quality and outcomes for all those living with congenital heart disease.
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Stay Connected
Click here to sign-up for Conquering CHD's transparency and public reporting mailing list.
Conquering CHD Stories
Sydney Kim
“Sydney has already overcome so many challenges in her young life. I used to worry so much about her future because of how sick she was as a little child. But seeing her now and how much she has grown, I feel that there is no limit to what Sydney can do or achieve. I will always be thankful to Conquering CHD for tirelessly advocating for those with CHD like Sydney.”
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