Conquering CHD is the resounding voice of the congenital heart community. Our voice is strengthened by the involvement of all of those who share our mission - those who share their stories, and advocate on behalf of the people in their lives affected by congenital heart disease. Our efforts in transparency and public reporting of congenital heart disease outcomes are placed front and center at our annual Summit Series, and patients and families are a critical component of these advocacy measures. Read below for more background on transparency and public reporting, and be sure to join us at the next Summit!
Key Tenets of Transparency
Working together to improve transparency, congenital heart programs, patients and families can improve outcomes and save lives. Congenital heart disease data may be complicated, but sharing information need not be so.
Summit Series History
Conquering CHD's Summit Series builds on six years of collaboration between patients, families, care providers, policymakers, healthcare administrators, and new media, with the ultimate goal of improving quality and outcomes for all those living with congenital heart disease.
Making Sense of Congenital Heart Surgery Data
Conquering CHD is committed to empowering patients and families. Patients and families deserve essential information to help make important health care decisions. As this data becomes available it can be very hard to understand. It is our hope that this resource can help.
Watch the 7th Summit
Recorded live on September 29, 2020.
8th Summit: Save the Date
Follow Conquering CHD on social media for the latest news on the 8th Summit, being held Fall 2021, and hosted by Stanford Children's Health.
Click here to sign-up for Conquering CHD's transparency and public reporting mailing list.
Conquering CHD Stories
Taosies was born in January 2010 with Critical Congenital Heart Disease. His anatomical diagnosis is Double Inlet Left Ventricle (DILV) with Transposition of the Great Arteries (TGA), also known as single ventricle anatomy or “half a heart.” There is no repair available for his anatomy, only palliative surgeries to make the most of what his...Full Story>