Losing a loved one to congenital heart disease is life-altering. However, you are not alone. Conquering CHD warmly welcomes bereaved families in all aspects of our programming and understands that bereavement support is crucial. We hope you will find value in the resources shared below and know we hold your family and your loved one in our hearts.
Connection & Support
When you are ready, connecting with other families who are bereaved can be an empowering step in your grief journey. Finding professional support is also important to consider.
A Facebook group by Conquering CHD to connect bereaved families affected by congenital heart disease
The Compassionate Friends
Supporting the family after a loved one dies
Bereavement Camps, Retreats and Recreation
Search Needy Meds' database of bereavement camps, retreats, and recreational programs
Helping grieving parents and families rebuild their lives following the death of a child at any age
National Alliance for Grieving Children
The National Alliance for Grieving Children lists grief support service providers who serve children, teens and their families
Bereavement Leave from Work
A comprehensive resource for taking bereavement leave from work, by Employment Law Handbook
Understanding & Managing Grief
Understanding how grief works may help on your journey of managing it. Most importantly, you are not alone.
A list of grief-specific articles by Hospice Foundation of America
How Children Grieve
A resource from American Academy of Pediatrics on how children grieve
Managing Grief in College
Advice and resources for grieving college students
Managing Grief for Young Adults
Actively Moving Forward® is a national network of young adults, ages 18-25, supporting young adults who are grieving a death or their person’s diagnosis of a terminal illness
Fathers Grieve Too
Information and advice for bereaved fathers, by Return to Zero: H.O.P.E.
Honoring Your Loved One
Your loved one will always hold a place in your life and holidays and important family dates may be very difficult without them. The resources below offer some opportunities to celebrate your loved one, as well as advice for processing and making it through these days.
Congenital Heart Disease Awareness Week
Annual week of awareness and advocacy for all congenital heart disease patients and families, February 7th-14th
Pregnancy & Infant Loss Remembrance Day
Worldwide remembrance day for families who lost a pregnancy or infant, held annually on October 15th
Children's Grief Awareness Day
Day recognizing the special needs of grieving children, held annually on November 19th
Coping with Holidays After the Loss of a Loved One
Recommended Reading for Children
Conquering CHD Stories
Our Beautiful Boy – JT’s Story
My husband, Michael, and I had been trying to have a baby for over three years (through gestational surrogacy), and after several failed attempts and a miscarriage, we finally made it to the second trimester! When Michael, Michelle (our surrogate), and I attended the 20-week anatomy scan, we were shocked to find out that our...Full Story>