Shareable CHD Facts and Statistics That Make a Difference

Image showing the various infographics about congenital heart disease (CHD) that may be shared on Instagram, Meta, etc.

Did you know that 1 in 100 newborns is born with congenital heart disease (CHD)? Despite CHD being the most common birth defect worldwide, most people are unaware of its impact. Conquering CHD wants to change that.

Your own knowledge is a great first step, but we want to empower you to share this information. With 27 downloadable graphics designed for social media, share powerful facts and statistics that shed light on CHD, its challenges, and its lifelong impact on those of us living with it.

Join us in making every heartbeat count. Share the facts, spark conversations, and help build a brighter future for those affected by CHD. Let your #CHDVoice be heard!

How Big of an Issue is CHD?

Numbers and comparisons help paint a broader picture of CHD’s impact and show why CHD deserves our attention.

Share our 25+ CHD infographics to answer questions like:

  • Congenital heart disease consists of problems with the heart’s structure or the way it works that are present at birth, including related lifelong consequences.
  • The most common type of heart defect is a ventricular septal defect.
  • Congenital heart disease is the mos1t common birth defect.
  • There are over 2 million people in the U.S. living with congenital heart defects.
  • Nearly 1 in 100 newborns are born with CHD.
  • 40,000 infants in the US are born each year with CHD.
  • CHD is 30 times more common than cystic fibrosis and 50 times more common than childhood cancer.
  • Congenital heart defects are the leading cause of infant death due to birth defects.
  • In 2013, costs for hospitalizations associated with CHD were more than $6 billion.

The Lifelong Journey with CHD

While a diagnosis of CHD can be overwhelming, learning about its potential health challenges and neurodevelopmental effects empowers individuals and families to make informed decisions and access necessary support.

  • There is no cure.
  • CHD is a lifelong disease, requiring ongoing specialized care.
  • 25% of children born with CHD need heart surgery or other interventions in the first year of life to survive.
  • 25% of babies born with a critical CHD will not see their first birthday.
  • 85% of children born with CHD are living into adulthood.
  • People with CHDs face a lifelong risk of health problems such as issues with growth and eating, developmental delays, difficulty with exercise, heart rhythm problems, heart failure, sudden cardiac arrest, stroke breathing problems, kidney failure, seizures, mental health challenges, and increased risk of cancer.
  • CHDs can have important lifelong neurodevelopmental and neurocognitive effects, leading to challenges in education, employment, and social relationships.
  • Children with CHD are about 50% more likely to require special education services compared to children without birth defects.
  • Congenital heart defects are now the most common heart problem diagnosed in pregnant women.

The Gaps in Care and Support

Understanding the challenges of accessing recommended care and losing follow-up paves the way for advocating for improved systems and support for individuals with CHD throughout their lives.

  • In 2013, costs for hospitalizations related to CHD were more than $6 billion.
  • In 2018, there were 40,154 surgical procedures performed.
  • By age 13, nearly 50% of children are already lost to care.
  • 61% of young adults with a CHD will stop seeing a cardiologist by the time they are 18 years old.
  • Fewer than 10% of adults with CHD are receiving recommended care.

The Mystery of What Causes CHD

Though much remains unknown about the causes of CHD, exploring the current understanding of its origins and genetic link sheds light on ongoing research efforts and the importance of supporting further investigation.

  • Most causes of congenital heart defects are unknown.
  • A baby’s risk of having a congenital heart defect increases by three times if the mother, father, or sibling has a CHD.

The Power of CHD Research

Thanks to medical advances, patients with congenital heart defects are living longer, but there is still much work to be done. It is part of our mission to continually support the research necessary to find the best treatments and work toward a cure for CHD. By understanding the impact of research, we can all play a role in supporting advancements and empowering individuals to thrive.

  • Survival rates for children with CHD
  • Ongoing research for a cure

How to Use the Downloadable Graphics

Ready to become a CHD champion on social media? Don’t just share once, share consistently! We have 27 graphics available so you can:

  • Post consistently: Maintain momentum by scheduling regular CHD awareness posts throughout the week or month.
  • Add a prewritten caption: Copy and paste the handy caption suggestions in the caption document in the graphics folder. feel free to personalize your message.
  • Share across platforms: Utilize the JPG files for Facebook, Instagram, Twitter, Pinterest, Threads, and more.

You can download all 27 of the graphics with captions in a zip file or one image at a time, in which case, please save the link to this page to easily find them in the future.

Subscribe To Our Newsletter

Become a member of Conquering CHD's network to stay connected.

You have Successfully Subscribed!