REGISTRATION FOR THIS EVENT HAS CLOSED.
Stay tuned for 2022 dates coming this Spring!
Your voice matters!
Join patients and families like you, along with medical providers and federal policymakers, to educate our members of Congress about congenital heart disease! Lend your voice to the cause and together, we will conquer CHD.
Advocates from the following states have already registered. Is your state on the list?
Agenda
Here’s a brief agenda overview:
Sunday, February 28, 2021
10:00 am PT / 11:00 am MT / 12:00 pm CT / 1:00 pm ET
Pre-Conference Health Disparities Meeting, a follow up from the 2020 Summit on Transparency and Public Reporting
- Listen. Learn. Act.
- Registration for this pre-conference meeting is free
Monday, March 1, 2021
10:00 am PT / 11:00 am MT / 12:00 pm CT / 1:00 pm ET
Conference Day One
- Training in Civics, History of CHD on Capitol Hill, Advocacy
- Don’t miss the game show, inspirational patient and family stories, and shout-outs from Legislators
Tuesday, March 2, 2021
Times TBD
Conference Day Two
- Virtual meetings with the offices of your 2 Senators and 1 Representative
Conquering CHD Stories
Half a Heart, A Whole Lot of Fatherly Love
Three open heart surgeries and no cure. That was the uncertain future surrounding our son Theo’s life expectancy. In March 2020, the Fetal Heart Center at Children’s Health Dallas determined Theo had Tricuspid Atresia and Hypoplastic Right Heart Syndrome, meaning he would be born with only half a heart. My wife Brooke and I were...
Full Story>
