At Conquering CHD, we believe accurate and timely information is crucial when making decisions about your care. We have designed resources to assist you in discussions with your care team throughout your journey with CHD. The following tools are intended to promote positive and informative conversations with your medical team; they are not a substitute for medical advice and should be considered one piece of the decision-making puzzle.
Questions to Ask Your Care Team
Guided Questions Tool: Pediatric Edition
Questions to ask your care team, at multiple points in your CHD journey, specifically for the pediatric patient and their family.
Guided Questions Tool: ACHD Edition
Questions to ask your care team, at multiple points in your CHD journey, specifically for the teen and adult patient and their family.
Guided Questions Companion Tool
A video by Children's Hospital Wisconsin, explaining how to utilize the Guided Questions Tool.
Hospital Navigator **coming soon**
An interactive platform designed to educate and empower the CHD patient in choosing the right surgical program for their needs.
Hospital Navigator Companion Tool
A video by Dr. Dunbar Ivy of Colorado Children's Hospital, featuring Conquering CHD Executive Director David Kasnic, on the importance of patients and families having access to, and education surrounding, hospital outcomes and data.
This interactive checklist guides patients gradually through the process of transition from pediatric to the appropriate adult care, and helps them take ownership of that care. This resource is setup in phases, rather than by age, making it useful to patients across the lifespan.
From quizzes to fact sheets, this site helps teenagers understand the important of taking control of their health. While this site is not specific to congenital heart disease, there are many great resources than can be helpful.
I Heart Change - A Canadian Project
This website is designed mainly for young people with congenital heart disease. You may need to register to view the resources available. Parents, caregivers and health care professionals may also register.
Conquering CHD Stories
A Mother’s Love
"Pregnancy is hard. Having a congenital heart defect (CHD) during pregnancy is even harder." Loryn McGill is a heart warrior and mother. Loryn shares her experience with pregnancy, and discusses the challenges and beauty, of motherhood.Full Story>