At Pediatric Congenital Heart Association, we believe accurate and timely information is crucial when making decisions about your care. We have designed resources to assist you in discussions with your care team throughout your journey with CHD. The following tools are intended to promote positive and informative conversations with your medical team; they are not a substitute for medical advice and should be considered one piece of the decision-making puzzle.
Guided Questions Tool: Pediatric Edition
Questions to ask your care team, at multiple points in your CHD journey, specifically for the pediatric patient and their family
Guided Questions Tool: ACHD Edition
Questions to ask your care team, at multiple points in your CHD journey, specifically for the teen and adult patient and their family
Guided Questions Companion Tool
A video by Children's Hospital Wisconsin, explaining how to utilize the Guided Questions Tool
“PCHA means that I have someone fighting to make sure I have access to information that I can understand and for legislation that impacts my future health.” – TrinityFull Story>