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A diagnosis of congenital heart disease can be scary and overwhelming, no matter when it happens. But there is hope! Thanks to new and better treatment, chances of surviving and thriving are better with the right care.

At Pediatric Congenital Heart Association, we believe information is important when making decisions about that care. We have shared trusted resources below, to help you understand your CHD and talk with your care team at different times in your journey.

When you are ready, we hope you will review other sections of our website and utilize resources as you manage care over your lifetime. Together we are Conquering CHD!

What is CHD?

Congenital heart disease is a lifelong journey for patients and their families. Read below for multiple definitions of CHD, and key terminology for every CHD patient and family.

Decision Making

Having the right information when speaking with your care team and making decisions is very important. The empowered and educated patient will likely receive the right care and may experience better longterm outcomes.

Partners in Health

PCHA partners with multiple organizations across the healthcare landscape, in an effort to raise the voices of patients and families affected by CHD.