A diagnosis of congenital heart disease can be scary and overwhelming, no matter when it happens. But there is hope! Thanks to new and better treatment, chances of surviving and thriving are better with the right care.
At Pediatric Congenital Heart Association, we believe information is important when making decisions about that care. We have shared trusted resources below, to help you understand your CHD and talk with your care team at different times in your journey.
When you are ready, we hope you will review other sections of our website and utilize resources as you manage care over your lifetime. Together we are Conquering CHD!
What is CHD?
Congenital heart disease is a lifelong journey for patients and their families. Read below for multiple definitions of CHD, and key terminology for every CHD patient and family.
Cardiac Development and Anatomy
Understanding how the fetal heart forms is crucial to screening, diagnosis and treatment of congenital heart disease.
Diagnosis and Defects
There are more than 36 kinds of congenital heart defects and people with congenital heart disease often have more than one heart defect. The following resources can help you understand more about your heart disease and/or defect(s).
Centers for Disease Control and Prevention
The CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD) is committed to helping individuals with congenital heart defects in each phase of life, through public health tracking, research, and prevention
National Institutes of Health
Explore this Health Topic to learn more about the NIH's role in improving health for congenital heart disease patients
Holden Joseph Flynn
It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Atrioventricular Canal, a complex single chamber...Full Story>