Jace Avanzato

Jace Avanzato was born in October of 2021, in the middle of a pandemic. His diagnosis, Tetralogy of Fallot with Pulmonary Atresia and Double Outlet Right Ventricle, required surgery at just 10 days old. The Avanzato Family had to endure a lengthy hospital stay without visits from family and friends, but that made their return home even more joyous.

Jace was born in October 2021, diagnosed with Tetralogy of Fallot with Pulmonary Atresia and Double Outlet Right Ventricle. He had his repair at 10 days old at Columbia University Medical Center with no complications.  When Jace’s family first brought him home, he was on oxygen due to his low saturation levels while sleeping.  Over time, Jace outgrew the sleep apnea causing dips in his oxygen saturation. 

Jace’s dad recalls that it was very difficult being inpatient during the pandemic when you are not allowed guests at the hospital due to covid restrictions. They were in the NICU for one month, and all their family and friends were so happy to see Jace once he finally returned home.

Now 11 months old, Jace loves the beach. He gets his best naps in while listening to the crashing waves. He also loves being in the water, whether that is the bath or Grandma’s pool in the summer. 

While Jace will need care for his CHD throughout his life, as with a procedure coming up this Halloween, Jace’s parents are optimistic about his future. Their hope is simply that he lives a very healthy and happy life.

When facing CHD, Jace’s parents know the importance of being part of a community. Dad Jordan said, “We have followed Conquering CHD since Jace was diagnosed. Every story is so inspiring. We have felt like we are part of the Conquering CHD family.”

For more on Jace and his family’s story, visit their website: https://sites.google.com/view/jaceemilavanzato/home