Blog
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Grace
Grace was born on March 7, 2017. At birth, to her parents heartbreak, she was diagnosed with complete atrioventricular canal defect (AVSD), as well as trisomy 21. She had open heart surgery on August 7, 2017 at just 5 months old. The first year of her life was hard on her family, especially the first…
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Taosies Carpenter
Taosies was born in January 2010 with Critical Congenital Heart Disease. His anatomical diagnosis is Double Inlet Left Ventricle (DILV) with Transposition of the Great Arteries (TGA), also known as single ventricle anatomy or “half a heart.” There is no repair available for his anatomy, only palliative surgeries to make the most of what his…
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Holden Joseph Flynn
It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Atrioventricular Canal, a complex single chamber…
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Carter Fidel Williams
“When we first learned of our son’s congenital heart defect, we wanted to ensure that we were equipped to face this challenge. We are very grateful for PCHA, the information and support we received was invaluable as it properly prepared us for this journey.” – Shuntae Williams
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Trinity Higgins
“PCHA means that I have someone fighting to make sure I have access to information that I can understand and for legislation that impacts my future health.” – Trinity
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Joshua Morgan
Joshua was born, at 36 weeks and 4 days, on November 25, 2017, at 7:55pm. He was delivered early due to his dropping heart rate during my routine check ups. Once Joshua was here, he was 3 pounds and 6.1 oz, and went straight to the Edward NICU. While he was there, it was discovered that he…
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Eva Burt Edinger
“My CHD went undetected for the first year and a half of my life. After being diagnosed with an Atrial Septal Defect, I underwent open heart surgery, spent several weeks in intensive care, and was not expected to live. Now, as an adult, I have no physical restrictions and I live life to the fullest!…
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Sai Shah
Sai’s journey started off with a lot of heartache, stress & worry but his life continues forward with a lot of hope, love, laughter & amazement.
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Artyom Pyatin
Artyom was born in April 2009 with Congenital Heart Disease. Anatomically speaking, he had a moderate Atrial Septal Defect (ASD) but remained largely asymptomatic. At the time his biggest hurdle was undiagnosed complex airway disease. Congenital Cardiologists agreed the airway issues should be addressed before attempting any repair of his ASD. For several years, Artyom’s…
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Barrett Lloyd
Barrett Lloyd Chenevert was born just hours after his due date in July in 2014 and his parents had no idea that anything was out of the ordinary. Their pregnancy was fairly typical with two normal ultrasounds and no other significant issues. After a long and exhaustive labor that started with a two-hour car ride…