COVID-19 Update
As the COVID-19 situation is rapidly changing, Conquering CHD is committed to providing its community with trusted resources from expert sources. Please continue to watch this blog and our social media channels for information pertinent to the CHD community.
Read our original statement on COVID-19 from March 13, 2020 here.
WHAT WE KNOW
- CHD patients of all ages remain in the ‘high risk for serious illness from COVID-19’ category, as defined by CDC
- WHO, CDC, and White House officials have recommended Social Distancing for individuals, communities, and organizations
- Governors have issued mandatory Social Distancing or Shelter-in-Place orders in most States, including closing non-essential businesses
- Primary school systems and higher education programs have canceled in-person classes and moved to virtual learning
- American College of Cardiology and American Academy of Pediatrics helped an emergency funding package get signed into law, allowing an increase to telemedicine services
WHAT YOU SHOULD DO NOW
- Continue practicing Social Distancing and Shelter-in-Place techniques
- Wash your hands regularly, avoid touching your face
- Sanitize and clean your home often
- Communicate with your medical team as needed
- Advocate for telemedicine appointments
- Connect with others using social media, video chat services, text, and phone calls
- Refer to your State’s public health experts as some geographic areas begin to relax previous shelter-in-place and social distancing mandates
CONQUERING CHD RESOURCES
We have heard your concerns around the uncertainty of COVID-19 for those living with CHD and the following resources are offered in response:
InformCHD – a patient-reported database in collaboration with health data experts at ArborMetrix, which will collect data on COVID-19 and CHD. This is research that matters to all of us, and it matters right now. Follow the link to learn more and participate.
Social Distancing for CHD Patients & Families, Conquering CHD
MENTAL HEALTH & SUPPORT RESOURCES
 St. Jude Children’s Hospital |  Child Mind Institute |  Children’s Hospital Colorado |
 CNOC |  CNOC |  CHC Nevada |
 WeGo Health Twitter Campaign |  CDC |  Dr. Melissa Cousino, PHD |
 AHA |  CDC |
CLINICAL RESOURCES
 CDC |  CDC |  CDC |
 CDC |  CDC |  Michigan Medicine |
 CDC |  CDC |  CHPHC |
LEGAL RESOURCES
For patients who have experienced healthcare discrimination during the global health crisis:
U.S. Dept. of Health & Human Services Office for Civil Rights
Americans with Disabilities Act Discrimination Complaints
RESOURCES FOR PROVIDERS
Crisis Management in Congenital Cardiac Surgery, WJPCHS
Helping the Helpers, CNOC
Guidance for Healthcare Providers Caring for Pediatric Patients, AHA