Blog

  1. Teen Topics – The Top 10 Things to Remember About CHD as an Adult

    It often seems that the “taboo topics” in life aren’t really all that relevant until your teen years. As the seasons change, new milestones come and go.  This can be an especially trying time in the life of an adolescent with congenital heart disease, especially as they are undergoing the major transition of leaving the nest…

  2. CDC Role in the CHD Community

    Welcome to our latest blog update, where we delve into the significant contributions of the Centers for Disease Control and Prevention (CDC) and the National Center on Birth Defects and Developmental Disabilities (NCBDD) in the realm of Congenital Heart Disease (CHD). These organizations are at the forefront of advancing our understanding and improving the lives…

  3. How to Help Your Child Stay Still During Medical Imaging

    Medical imaging plays an essential role in CHD care. However, for parents, the thought of their child undergoing medical imaging can be a source of stress and anxiety.

  4. 9 Things to Monitor When Taking Medication for Congenital Heart Disease (CHD)

    When it comes to managing CHD, medication plays a crucial role in ensuring optimal heart function and preventing potentially life-threatening complications. However, it’s essential to monitor certain aspects of your health while taking these medications to ensure their effectiveness and avoid potential side effects. Some types of monitoring can be done right at home; other…

  5. Top 10 Things to Know about Mental Health & CHD

    When heart defects are first diagnosed, the heart structure and function get all the attention.  However, congenital heart disease (CHD) may have a lifelong impact on your whole being. This includes your mental health. It is important that we make mental health care a normal part of CHD care. As an adult with CHD we…

  6. A Parent’s Guide to Traveling with Kids with CHD

    Every parent wants to take their child on an adventure that creates lasting memories. But when your child has CHD, planning a trip requires extra preparation to ensure their safety and well-being. Before you explore destinations near and far, here are 7 tips to help you navigate the challenges of traveling with kids with CHD,…

  7. Photo of the pills and tablet for medications that might be used to help pediatric patients with Congenital Heart Disease (CHD).

    Medications for Congenital Heart Disease: What Every Parent Should Know

    While this blog post has been reviewed by clinical experts, it does not substitute for personalized advice from your healthcare providers. Be sure to talk to your doctor if you have any questions or concerns. Congenital heart disease is a daunting diagnosis for any parent. But, with the right treatment plan in place, your child…

  8. Questions to Ask Your Doctor About Congenital Heart Disease (CHD)

    This Guided Questions Tool will provide you with questions you never thought to ask your care team about Congenital Heart Disease (CHD). En Español / ACHD versions of this resource are available. QUESTIONS TO ASK THE CARDIAC TEAM It is hard to hear the words “there is something wrong with your baby’s heart.” But, there…

  9. Five Tips For Coping With Holidays After the Loss of a Loved One

    Here are some helpful tips for handling grief during the holiday season. Feel Your Emotions and Be Honest About How You Feel Everyone grieves differently and the holidays can be difficult for families after the loss of a loved one. Give yourself space to feel your emotions and be honest with yourself and others about…

  10. Five Ways to Support Bereaved Family or Friends This Season

    Here are some helpful tips for how to support those who are grieving during the holidays. Support Their Choices Everyone grieves differently and the holidays can be difficult for families and friends after a loss. They may choose to skip holiday gatherings, change traditions, travel, etc. Support them in their choices surrounding the holidays. Extend…

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