Blog

  1. The Heart-Brain Connection: Neurodevelopment in CHD – Overcoming Obstacles 

    Thank you to everyone who participated in our live webinar “Neurodevelopment in CHD: Overcoming Obstacles” on June 14th, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation. We couldn’t meet in person in Washington D.C. this year, however, we felt our community would benefit from…

  2. One Gear in the CHD Machine… U.S. News Releases 2022 Rankings

    Congenital Heart Disease (CHD), and all of the many decisions that go along with it, often feel like a complicated machine with too many moving parts. We’re here to help patients and families. CHD can be complicated. For many patients and families, the CHD journey, especially CHD care, can feel like a complicated machine with…

  3. Mental Health 101

    Congenital heart disease is never just about the heart. CHD has a real, often invisible, impact on all aspects of life and health for patients and families, especially when it comes to mental health. View this resource En Español Congenital heart disease is never just about the heart. CHD has a real impact on all…

  4. Salud Mental 101

    La cardiopatía congénita nunca se trata solo del corazón. La CHD tiene un impacto real, a menudo invisible, en todos los aspectos de la vida y la salud de los pacientes y sus familias, especialmente cuando se trata de la salud mental. Vea este recurso en inglés aquí La cardiopatía congénita nunca se trata solo…

  5. The Gift of Life: It’s National Pediatric Transplant Week

    For some with congenital heart disease, a life-saving heart transplant is an inevitable part of treatment. This week is National Pediatric Transplant Week – a chance to honor and celebrate the gift of life provided through pediatric organ donation and transplant. Each year National Pediatric Transplant Week takes place during the last week of National…

  6. That’s a Wrap on Heart Month 2022!

    Heart Month 2022 is over, but our work to conquer the most common birth defect is not. Let’s look back at a month of coming together as a community, of awareness, hope, the sometimes hard realities, and raising our resounding #CHDVoice as one. As most of us within the CHD community know, February is about…

  7. A Look Back at CHD Wise 2021

    A diagnosis of congenital heart disease can be scary and overwhelming, no matter when it happens. With resources like our CHD Wise educational webinar series, patients and families have information from experts from all over the country at their fingertips. CHD Wise is a virtual educational series designed to answer commonly asked questions from patients…

  8. CHD Myths: BUSTED!

    Unless you or someone you love is diagnosed with congenital heart disease, you may not know much about CHD. Patients and families can face a world with untrue preconceived notions or no knowledge at all about CHD, even from well-meaning friends and family. In today’s blog, we set out to bust some of the most…

  9. African American Innovators: “Where There is No Vision, There is No Hope.”

    African-Americans have made crucially important advancements in the medical field since the early days of our history – many of them were innovators in the fields of cardiology and cardiothoracic surgery. While this isn’t a full list, in honor of Heart Month and Black History Month, we are highlighting just a few of these amazing…

  10. CHD 101

    The medical world is full of abbreviations, acronyms, and confusing terminology. Whether you’re newly diagnosed or have been in the CHD community for a while, it helps to know what terms to use and what they mean. A diagnosis of a congenital heart defect comes with a whole host of acronyms and new medical terms…