Blog

  1. Dental Health and Heart Health Go Hand in Hand

    Printable PDF Young children with congenital heart defects (CHD) are at greater risk for tooth decay because their baby teeth may have weak enamel. Healthy teeth and gums are important for everyone but especially for children with heart conditions. Children with heart disease may have weaker teeth due to poor oxygenation. Cardiac medications that may…

  2. Precision Medicine: The Future of Congenital Heart Disease Care?

    Every person is different. Every person with CHD is different. So why would you want the same treatment plan for all CHD patients? Much has been accomplished in the last 10-30 years for the care of patients with congenital heart disease, improving overall outcomes significantly. Most centers, however, still use a one-size-fits-all treatment plan for…

  3. “It Takes a Team”: A Discussion About Feeding and Nutrition in CHD

    Feeding and nutrition can be complicated for parents to navigate for their child with congenital heart disease. Nutrition is important for everyone, but for infants and children with CHD, it is essential, not just for survival, but for helping them thrive. In recent years, much of the focus on nutrition for CHD patients has shifted…

  4. CHD Care Doesn’t Have to be Scary: Helping Your Child Cope with Their CHD Care

    Congenital heart disease is a lifelong condition, requiring ongoing specialized care. Children with CHD often have clinic appointments, invasive procedures, and long hospital stays to contend with which can often present challenges for parents helping them cope. Congenital heart disease is a lifelong condition, requiring ongoing specialized care, which can sometimes present a challenge for…

  5. Transparency and Public Reporting: What Is It and Why Does It Matter?

    Congenital heart disease can be complicated to navigate, especially when it comes to choosing care for yourself or your child. Working together to improve transparency, congenital heart programs, patients and families can improve outcomes and save lives. Congenital heart disease data may be complicated, but sharing information need not be so. When you or your…

  6. It’s Never Just the Heart: Promoting Mental Health for Children with CHD and Their Families

    Congenital heart disease is never just about the heart. CHD has a real impact on all aspects of life and health for patients and families, especially when it comes to mental health. For those impacted by the most common birth defect, it’s never just about the heart. Mental health issues are extremely common within the…

  7. Promoting Mental Health for Parents of Children with Heart Conditions

    Developed by: Cheryl Brosig, PhD, Herma Heart Center, Children’s Hospital of Wisconsin, Milwaukee, WIErica Sood, PhD, Nemours Cardiac Center, A.I. duPont Hospital for Children, Wilmington, DE View the PDF Pediatric heart problems can have a huge impact on parents and families. It is common for parents to feel scared and overwhelmed when learning about their…

  8. Pediatric CHD and COVID-19: Vaccines, Variants, and Very Important Decisions

    Making decisions during a global health pandemic is not easy. Making decisions regarding a CHD patient during a global health pandemic is that much more complex. CHD patients and families alike are weighing their concerns about pediatric CHD in the COVID-19 world. Questions like “how can I weigh the various risks for my child?,” “how…

  9. Why Health Disparities Should Matter to You

    Not every person living with CHD in the United States has equal access to appropriate care, equal treatment within the healthcare system, or even equal outcomes. Conquering CHD wants to change that and we need your help. Congenital heart disease is the most common birth defect, but not every person living with CHD has the…

  10. Health Disparities 101

    Not every person living with CHD in the United States has equal access to appropriate care, equal treatment within the healthcare system, or even equal outcomes. Congenital heart disease is the most common birth defect, but not every person living with CHD has the same access to, or treatment within, the U.S. healthcare system. Health…