search

Blog

  1. School Intervention: A Complete Resource Guide

    PCHA welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin.  Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included for easy reference.  Going to school, for a child with complex medical condition, can be scary for everyone! Families might worry…

  2. Family and Medical Leave Act  (FMLA) Fact Sheet 

    As adults, we can’t have our parents call us in sick to school when we have extended medical needs or family to take care of, but we may not be eligible for extended disability leave from work. The Family Medical Leave Act (FMLA) could be a good option for you,  if you or your loved…

  3. Teen Topics – The Top 10 Things to Remember

    It often seems that the “taboo topics” in life aren’t really all that relevant until your teen years. As the seasons change, new milestones come and go.  This can be an especially trying time in the life of an adolescent with congenital heart disease, especially as they are undergoing the major transition of leaving the nest…

  4. CHD and the Taboo Q&A: Your Questions Answered

      Today we revisit a couple of Q&A videos that were originally posted in October of 2017. The first video is an interview with Dr. Madsen, on alcohol and drugs. And the second video is an interview with Dr. Gurvitz on college, tattoos, and contraception.  Dr. Nicolas Madsen – Activity, Drugs & Alcohol, Related Conditions,…

  5. School Intervention Series: Making A Difference

    In the last week in our series on how CHD affects us at school and work, we hear from Kyle Herma, a School Intervention Specialist at Children’s Hospital of Wisconsin. Although this blog was originally posted in the summer of 2017, these tips, tricks, and recommendations for navigating a school’s system as a person who…

  6. Back to School Q&A Panel

    This week, we are continuing to learn about how CHD affects people in their work, or at school. This is an interview that was conducted back in August 2017, but is still relevant to our topic today.    Congratulations on the start of a new school year! Please introduce yourself. What grade will you or…

  7. Over the Counter Medications

    As patients with pre-existing conditions, who may be on a list of prescription medications, it’s important to know which over-the-counter (OTC) medications are safe for CHD patients  Recently at an Adult Congenital Heart Disease Conference, Justina Damiani, Inpatient Cardiology Pharmacist at Lurie Children’s, shared her recommendations for OTC meds, for those everyday illnesses or aches and…

  8. School Intervention Series: A Complete Resource Guide

      PCHA welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin School.  Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included at the end of this post for easy reference.  Going to school for a child with complex medical condition…

  9. Father’s Day – A Heart Dad How-To

    For Heart Dads new to CHD,  feeling a little lost, or those not sure where they fit in the CHD world, Aaron Carpenter shares what he found, after 8 years on the CHD roller coaster, worked best for him and his family. His tips just might help you too! I am the dad of two…

  10. New Diagnosis – Pulse Oximetry

    This week we will hear two perspectives on the benefits of pulse ox and the effort to make this non-invasive test a standard screening of newborns. Pulse Ox screening has made it possible to detect CHD in many newborns that would have otherwise gone home undiagnosed. This week’s contributions were provided by Dr. Gerard Martin, a…