Blog

  1. Lifelong Care: Advocating, Navigating, and Managing Your Path: School, Work, Disability

    Thank you to everyone who participated in our live webinar “Advocating, Navigating, and Managing Your Path: School, Work, Disability” on August 15th, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation. We couldn’t meet in person in Washington D.C. this year, however, we felt our…

  2. Step Up and Thrive! (Transition): What is Transition and Why Does it Matter?

    Thank you to everyone who participated in our live webinar “What is Transition and Why Does it Matter?” on August 2nd, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation. We couldn’t meet in person in Washington D.C. this year, however, we felt our community…

  3. The Heart-Brain Connection: The Impact of CHD on Neurodevelopment – From Infancy to Adulthood

    Thank you to everyone who participated in our live webinar “The Impact of CHD on Neurodevelopment – From Infancy to Adulthood” on June 28th, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation. . We couldn’t meet in person in Washington D.C. this year, however,…

  4. The Heart-Brain Connection: Navigating the K-12 Education System with CHD 

    Thank you to everyone who participated in our live webinar “Navigating the K-12 Education System with CHD” on June 24th, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation . We couldn’t meet in person in Washington D.C. this year, however, we felt our community…

  5. The Heart-Brain Connection: Neurodevelopment in CHD – Overcoming Obstacles 

    Thank you to everyone who participated in our live webinar “Neurodevelopment in CHD: Overcoming Obstacles” on June 14th, 2022, as part of our Heart Connection 2022 webinar series. Read on for the summary and full video presentation. We couldn’t meet in person in Washington D.C. this year, however, we felt our community would benefit from…

  6. One Gear in the CHD Machine… U.S. News Releases 2022 Rankings

    Congenital Heart Disease (CHD), and all of the many decisions that go along with it, often feel like a complicated machine with too many moving parts. We’re here to help patients and families. CHD can be complicated. For many patients and families, the CHD journey, especially CHD care, can feel like a complicated machine with…

  7. Mental Health 101

    Congenital heart disease is never just about the heart. CHD has a real, often invisible, impact on all aspects of life and health for patients and families, especially when it comes to mental health. View this resource En Español Congenital heart disease is never just about the heart. CHD has a real impact on all…

  8. Salud Mental 101

    La cardiopatía congénita nunca se trata solo del corazón. La CHD tiene un impacto real, a menudo invisible, en todos los aspectos de la vida y la salud de los pacientes y sus familias, especialmente cuando se trata de la salud mental. Vea este recurso en inglés aquí La cardiopatía congénita nunca se trata solo…

  9. The Gift of Life: It’s National Pediatric Transplant Week

    For some with congenital heart disease, a life-saving heart transplant is an inevitable part of treatment. This week is National Pediatric Transplant Week – a chance to honor and celebrate the gift of life provided through pediatric organ donation and transplant. Each year National Pediatric Transplant Week takes place during the last week of National…

  10. That’s a Wrap on Heart Month 2022!

    Heart Month 2022 is over, but our work to conquer the most common birth defect is not. Let’s look back at a month of coming together as a community, of awareness, hope, the sometimes hard realities, and raising our resounding #CHDVoice as one. As most of us within the CHD community know, February is about…