Patrick William Walker White
On September 20, 2018, at our twenty-week ultrasound, we found out that our beautiful baby would not only be a bouncing baby boy, but also a heart warrior. It took two days and multiple scans to finally be diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Basically, he would be born with half a heart. The following days and weeks were filled with heartache and fear of the future our baby faced.
In January, we relocated to Denver to be close to Denver Children’s Hospital and the doctors that would be treating our little boy. On January 30, we were unexpectedly told we would be delivering early. Eighteen long hours later, Patrick William Walker White made his debut after an emergency cesarean section. He was rushed away to have lines put into his belly button, so they could deliver life-saving
At five days old, “Walker” had his first open-heart surgery to place a BT shunt. This would help his heart pump blood to both his lungs and his body. After days on a breathing machine, Walker made great progress and was able to breathe on his own. Soon after, he was moved to the CPCU or step-down unit.
We enjoyed the time as a family around Denver, but it soon became apparent that Walker would need another procedure to place a second stent in this shunt. During the next months and a few short hospital stays, we found out his heart function was declining. Due to the decline in his heart’s ability to pump blood, the doctors decided his second open heart surgery was going to be performed earlier than expected. At 3 months and 10 days old our beautiful, happy boy was taken in for his second surgery. We were told to expect a short recovery, but it ended up differently. Walker suffered more damage to his lungs while on bypass, landing him in the hospital for close to another month.