Volunteer Spotlight: Casey Fletcher

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” – Margaret Mead

Volunteers are the heart of our organization, bringing their passion, empathy, and personal experience to all they do. Despite wading through the darkness of CHD, our volunteers bring light to the heart community. Join us now as we shine a light on them, highlighting their dedication and accomplishments!

Meet Casey Fletcher! This extraordinary volunteer originally came to Conquering CHD as a founder of our Louisiana chapter, and, after a move, she continues her service as Board President with the Virginia chapter.

What’s your connection to CHD?

Casey: My son Hugh was diagnosed at 2 days old with a Coarctation of the Aorta. He had surgery at 4 days old at Children’s Hospital in New Orleans. He is now 3 years old!

What inspired you to get involved? 

Casey: Our son had a surgery that was complication free.  He was home 5 days later, which I am so thankful for, but I found that my support from my community dropped off once we were home. I got involved in starting the Louisiana chapter because I didn’t want that to happen to other families. When we moved back to Virginia it was no question that I wanted to continue my involvement!

Tell us about your volunteer work within the chapters?

Casey: As the president of the board, I am a jack of all trades, working on social media, support, onboarding new volunteers and board members, and managing inventory. I am also the hospital coordinator for UVA!

What’s your favorite volunteer activity?

Casey: I love working with our board. Seeing the visions and bringing them to life. We have had a huge year in 2022, coming out of covid slumber, and we are really revving up to expand and improve on all the great things we did

What words of encouragement would you like to give those impacted by CHD? 

Casey: I always want parents to know that “It is okay to not be okay” You do not need to put on a cape of strength all of the time. Let yourself be vulnerable, and ask for help, because you should not carry it all on your shoulders alone.


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