Blog
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Hope for Research in the New Year
The more patients that survive into their teen an adult years, the greater the need to improve long term outcomes and quality of life. Physical Therapist Casey Vogel studies the impact of exercise in those with CHD on overall health.
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How many babies are born with heart defects?
Congenital means present at birth, therefore congenital heart defects are heart conditions that a baby is born with. These conditions range from mild to serious and are the most common types of defects that affect babies at birth. CHD Awareness is important because birth defects are structural changes present at birth. Babies born with these…
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New Year, New Blog
Happy New Year! It’s 2022! With resolutions and a blank calendar, we all have a chance to make the most of a fresh start, to learn new things, set out on new adventures, and make new memories. Conquering CHD is going to take that chance, too, right here in our blog! In the past we’ve…
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What are symptoms of congenital heart defects?
Congenital heart defects, commonly referred to as a CHD, are typically diagnosed while someone is a child, or before birth. In rare cases, CHDs are undiagnosed until adulthood. This is because some defects are hard to detect. Diagnosing CHD If you or your child has a congenital heart defect, you need to know what type,…
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What is a CHD Baby?
Also known as CHD, congenital heart disease is a term for babies born with heart defects. Therefore, a CHD baby is one who has CHD. These defects affect the normal way the heart works, but the term “congenital” means the condition is present from birth. It is one of the most common types of birth…
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What is the most common congenital heart defect in infants?
Congenital heart defects are much more common than you might think. In fact, congenital heart defects impact 1 in 100 babies per year that are born in the U.S. alone. They can range from severe to mild symptoms in infants from the time they are born and sometimes require surgery or other serious procedures. Just…
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Marilyn’s CHD Roller Coaster
Marilyn is a CHD pioneer, witnessing the progress of cardiac care over the course of seven decades. A true marvel, Marilyn has lived an amazing life, full of ups and downs, but never losing hope. Have you ever tried explaining what it’s like living with a Congenital Heart Defect (CHD)? It’s like explaining a roller…
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Imagining the Possibilities – Rainbows of Hope
Imagine for a moment, a world where all children can see themselves in the pages of their favorite story. Think back to your childhood and your favorite children’s books. Which books come to mind? Why did those books leave such an impact – one which still resonates years later? For so many children, early experiences…
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Worth Every Single Minute
Growing up with CHD, we were often focused on staying healthy or recovering from various procedures, we may not have had the chance to consider how CHD may impact our future life goals, like starting a family. Planning for pregnancy, childbirth, and parenthood comes with a lot of uncertainty for women with CHD, often leading…
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It’s the Living Part that Matters
When Julie’s daughter Rose was born with a CHD in 1984, she knew the road ahead wouldn’t be easy, but she was determined to make the years, however many there would be, count. No one ever thinks that one day they will need to pick out a headstone for their child’s grave. No one ever…
