Blog

  1. Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story

    Chris was 15 years old when he decided that he wanted to be a firefighter. This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. But Chris was already pushing these boundaries…

  2. Hayden’s Legacy: A Safe Space for Grieving Families

    We have learned that it is not the walls of Hayden’s House of Healing that make it successful, but rather the spirit of the people that come and bravely share their stories, creating an incredible community of love and support.

  3. What Can a CHD Newborn Eat?

    CHD Parents Need to Prepare More than a Hospital Bag for a CHD Infant’s Birth An expectant mother and father are at their 20-week anatomy scan when the technician becomes eerily quiet. No more chatting about fingers and toes or the cute button nose. “There’s something wrong with the baby’s heart,” the doctor would say…

  4. Sometimes Congenital Heart Disease Isn’t #1 – And That’s OK

    CHD can occupy much of our lives, in times of crisis or through efforts to make a difference in the community. But sometimes it needs to take a backseat. This week, Jess Chenevert, our Marketing Director and mom to Heart Warrior Barrett, shares how CHD is just one part of our lives and that, at…

  5. An Open Letter to Our Village

    They say it takes a village. It sounds cliché, but it is true. As an adult with CHD, I see that the need for support, for that village, for your people to rally around you –  in crisis, in celebration, in life – does not end once you’re “grown up”.  Beyond our parents, our extended…

  6. Back to School Blog Wrap-Up

    September is in full swing and school is, once again, back in session. Our Back-to-School Blogs may continue to come in handy as the year continues. The August series is has been collected here if you missed it!

  7. Becoming a Mom with CHD

    Growing up to have a family of their own is the dream of many little girls, but when you have CHD, pregnancy can be a great risk. Still many patients can safely and successfully carry a baby. This week, Conquering CHD spoke to Melissa Lewis, she shares with us her journey to the birth of…

  8. Fitting in with Your Peers When You Have Congenital Heart Disease

    Going back to school is about more than liking our classes or keeping up academically.  It’s about more than our safety in the classroom. We want to make friends. We want to be liked. We want to fit in. In this week’s blog, Peyton, a high school junior, talks about finding your people when you’re a…

  9. An Open Letter to Phys. Ed. Teachers from a Student with CHD

    Going back to school also means going back to gym class. For those with CHD, it can be an added stressor, especially if we are unsure just how much our teachers know about our condition, our abilities, and our potential physical limitations. This week, Gloria, a high school senior with HLHS, shares an open letter…

  10. Are You a Teen with CHD Heading off to College? 10 Tips from CHDers Who’ve Done It

    For many, going off to college is the first major step toward independence. It could mean leaving home for the first time, living in a new city where you don’t know anyone, or starting a whole new life. Add a chronic illness into the mix, like CHD, and it can get tricky. Check out these 10…

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