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  1. 10 Inspiring Gratitude Quotes

    Gratitude quotes aren’t just for Hallmark cards. These quotes can help us reflect on all that we have to be thankful for and even inspire a friend or two. You can change your outlook on gratitude and put things into perspective with these inspirational quotes below. “At times, our own light goes out and is…

  2. New Diagnosis – Pulse Oximetry

    It’s Newborn Screening Awareness Month! Previously we shared these two perspectives on the benefits of pulse ox and the effort to make this non-invasive test a standard screening of newborns. Pulse Ox screening has made it possible to detect CHD in many newborns that would have otherwise gone home undiagnosed. These contributions were provided by Dr….

  3. Success in School – Communication is Key!

    As the new school year gets rolling again, it’s easy to see how the physical lists for supplies and schedules will help prepare our students for a successful year, but as a heart-parent, what can we do to help our students when CHD and school come together? This year, I am entering my eleventh year…

  4. Back-to-School Q&A Panel

    For our Q&A Back to School Panel this month, we interviewed three people to gain a greater perspective on how CHD affects kids differently during this exciting time of year. Congratulations on the start of a new school year! Please introduce yourself. What grade will you or your child be entering? Frances: My name is…

  5. School Intervention: A Complete Resource Guide

    PCHA welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin.  Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included for easy reference.  Going to school, for a child with complex medical condition, can be scary for everyone! Families might worry…

  6. Edward Bauman Celebrates One Year Post-Op

    One year after surgery, Adult CHD patient, Edward Bauman, decided to mark the occasion by creating a video that shares his experience preparing for and immediately following his procedure. Watch to hear about his journey and his tips and tricks that may help on yours! For more from Edward and his follow up video at…

  7. Back to School Transitions with Abby

    As the summer starts to come to an end, and we will discuss how CHD families prepare for going back to school. This week we have a story from Abby Hack, an adult CHD warrior, who is in her final years of college! When I was first diagnosed with a heart condition that required me…

  8. Family and Medical Leave Act  (FMLA) Fact Sheet 

    As adults, we can’t have our parents call us in sick to school when we have extended medical needs or family to take care of, but we may not be eligible for extended disability leave from work. The Family Medical Leave Act (FMLA) could be a good option for you,  if you or your loved…

  9. Make the Most of the Summer with Trinity

    As our summer fun starts to wind down, we will hear from Trinity, a heart warrior who knows how to have a good time and beat the heat during the summer! Summer is one of the best times of the year. No school, beach time, and warm weather (which is something that Wisconsin could use…

  10. Summer Fun with Artyom and Taosies!

    This week we will hear from Artyom and Taosies, two heart brothers who love to have fun during the summer! Together, they share tips on how to beat the heat and have a blast this summer! The thought of summer conjures images of sunshine, swimming pools, road trips, neighborhood block parties, and lots of time…