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  1. From the Dad of a Heart Warrior

    This is an account of the perspective of one heart dad’s experience with a child with CCHD (complex congenital heart defects).  This is especially for those who are just receiving a diagnosis for their child – read to the end, even if the beginning seems scary! Anxiety.  Fear.  Panic.  Despair.  Those are a few of…

  2. Covid 2020: Stories of Recovery

    Conquering CHD spoke with three members of the CHD community who contracted and conquered COVID-19 – a youth patient as shared by her mother, an adult patient/medical student, and a pediatric cardiologist. While their experiences with COVID-19 were difficult, their stories of recovery ultimately leave us with hope for the human spirit.

  3. To the mama out there learning your baby’s future will be different than you envisioned…

    Being a mom is a tough job, even scary at times, but the love for our children makes it all worthwhile. This Mother’s Day, one veteran heart mom has a message for those newly taking on the role. I’ve been in your shoes. Sitting in a similar, hard-backed chair, hunched over my lap, clutching tissues,…

  4. Carol’s Transplant Story – Donate Life Month

    Growing up with congenital heart defects, I had multiple surgeries and procedures to help give me the best quality of life possible. Despite this, by the time I was in my early 40’s, I was having worsening swelling, shortness of breath, and fatigue, which weren’t improving, even with increasing my medications. My ACHD doctor felt it…

  5. Check Out the New ACHD Info Kits

    Check Out the New ACHD Info Kits

    As we continue our commitment to the lifespan of patients and families affected by CHD, CCHD has launched our New ACHD Info Kit!! This kit, created especially for Teen and Adult Patients, includes several new resources designed to help patients transitioning to adult care as well as adults already there, into a handy padfolio. Check…

  6. New Diagnosis – Pulse Oximetry

    It’s Newborn Screening Awareness Month! Previously we shared these two perspectives on the benefits of pulse ox and the effort to make this non-invasive test a standard screening of newborns. Pulse Ox screening has made it possible to detect CHD in many newborns that would have otherwise gone home undiagnosed. These contributions were provided by Dr….

  7. Success in School – Communication is Key!

    As the new school year gets rolling again, it’s easy to see how the physical lists for supplies and schedules will help prepare our students for a successful year, but as a heart-parent, what can we do to help our students when CHD and school come together? This year, I am entering my eleventh year…

  8. Back-to-School Q&A Panel

    For our Q&A Back to School Panel this month, we interviewed three people to gain a greater perspective on how CHD affects kids differently during this exciting time of year. Congratulations on the start of a new school year! Please introduce yourself. What grade will you or your child be entering? Frances: My name is…

  9. School Intervention: A Complete Resource Guide

    CCHD welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin.  Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included for easy reference.  Going to school, for a child with complex medical condition, can be scary for everyone! Families might worry…

  10. Edward Bauman Celebrates One Year Post-Op

    One year after surgery, Adult CHD patient, Edward Bauman, decided to mark the occasion by creating a video that shares his experience preparing for and immediately following his procedure. Watch to hear about his journey and his tips and tricks that may help on yours! For more from Edward and his follow up video at…