Blog

  1. The Greatest Adventure Buddy

    Heart Dads play such an important role in their families – sometimes protector, sometime playmate, but always motivated by love. Father’s Day is just one of the chances we have to say thanks, to show our dads just how much they mean to us, and how their time and support were the greatest gifts a…

  2. Improving Access to Care for the LGBTQIA+ Community

    Access to the necessary care is already a critical issue for teens and adults in the CHD community. But for members of the LGBTQIA+ Community, the added uncertainty over stigma can lead to inappropriate care and even avoidance of treatment altogether. In this week’s guest blog, Joseph Lindsey, a public health professional, discusses the hurdles…

  3. Supporting Heart Siblings at Home – Part 2

    It may be difficult to balance the needs of your child with CHD and those of your heart healthy child. Siblings at home may feel left out or confused, and we may not always know how to best support them. In the final part of this blog series, Nicole Johnson, a Child Life Specialist, offers…

  4. Supporting Heart Siblings at Home – Part One

    It may be difficult to balance the needs of your child with CHD and those of your heart healthy child. Siblings at home may feel left out or confused, and we may not always know how to best support them. In this two-part blog series, Nicole Johnson, a Child Life Specialist, offers insight into how…

  5. Return to Me & Accurate Representation of CHD in Entertainment

    There’s always a bit of a thrill that comes with finding characters with CHD in a movie or a book. It’s an opportunity to our stories on screen, to know, somewhere in the world, thousands of people are reading about CHD. Some get it right, some are a bit off, but every effort to include…

  6. Stroke Awareness Month – Warning Signs and Patient Stories

    May is stroke Awareness Month. Revisit the warning signs of stroke and hear from patients who have survived and thrived after suffering strokes in this Blog Recap reboot. “We can only know how strong we are when we strive and thrive beyond the challenges we face.” Kemi Sogunle

  7. To Heart Moms This Mother’s Day, From a Grateful ACHDer

    I don’t know what it feels like to be a mother. I don’t know what it feels like to learn that my child has a CHD or have thoughts race through my mind as I wait to hear that she’s made it out of surgery.   But I have felt a mother’s love. I have felt…

  8. Research at Herma Heart Institute, Furthering Individualized CHD Therapies

    Research is vital to advancing CHD therapies and improving outcomes. Dr. Joy Lincoln and the Herma Heart Institute at Children’s Wisconsin are committed to that mission of advancement. In this week’s blog, read Dr. Lincoln’s article about the work they are doing to identify ways in which treatment can be tailored to the individual, and…

  9. Working with CHD, Sometimes You Need A Break

    Growing up, Leticia didn’t realize how much her CHD would factor into her future career. But after years in a field she loved, she realized it was becoming difficult to keep up. Thanks to a concerned supervisor, Leticia learned the Family Medical Leave Act could help ease some of her concerns. Growing up as a…

  10. Get Some Gear, Do Some Good

    When Justina Pearsall and her husband Aaron learned of their son’s diagnosis, they moved to Michigan for his care, where the idea for EKG Sportswear came to life. At my 14 week ultrasound, the OB/GYN found something “abnormal” about my son’s heart.  Although it was too early to tell, he called in the cardiologist at…