Blog

  1. Marilyn’s CHD Roller Coaster

    Marilyn is a CHD pioneer, witnessing the progress of cardiac care over the course of seven decades. A true marvel, Marilyn has lived an amazing life, full of ups and downs, but never losing hope. Have you ever tried explaining what it’s like living with a Congenital Heart Defect (CHD)?  It’s like explaining a roller…

  2. Imagining the Possibilities – Rainbows of Hope

    Imagine for a moment, a world where all children can see themselves in the pages of their favorite story. Think back to your childhood and your favorite children’s books. Which books come to mind? Why did those books leave such an impact – one which still resonates years later? For so many children, early experiences…

  3. Worth Every Single Minute

    Growing up with CHD, we were often focused on staying healthy or recovering from various procedures, we may not have had the chance to consider how CHD may impact our future life goals, like starting a family. Planning for pregnancy, childbirth, and parenthood comes with a lot of uncertainty for women with CHD, often leading…

  4. It’s the Living Part that Matters

    When Julie’s daughter Rose was born with a CHD in 1984, she knew the road ahead wouldn’t be easy, but she was determined to make the years, however many there would be, count. No one ever thinks that one day they will need to pick out a headstone for their child’s grave. No one ever…

  5. Setting My Own Limits

    Chris grew up playing every sport available, from baseball and football to water polo. When High School started, with more competitive play, his cardiologist didn’t think he should continue. Still, Chris found a way to keep his favorite sport in his life, despite his CHD.  He told us a bit about his experience in a…

  6. Nothing is More Beautiful

    Kintsugi is the Japanese art of putting broken pottery pieces back together with gold — built on the idea that in embracing imperfections, you can create an even stronger, more beautiful piece of art. Not unlike Kintsugi, our scars have made us stronger, more beautiful. Though we all see our scars differently, they impact the…

  7. Should I Participate in the CHD Online Fundraiser?

    If you have heard about the CHD Online Fundraiser then you will know how important it is to support this fundraiser. It is an online fundraiser by Conquering CHD that works towards support and research for those suffering from CHD. This is to help children and adults alike. You may be wondering why you should…

  8. What is the CHD Organization?

    Conquering CHD is a CHD Organization. It is a volunteer-based nonprofit organization that works to improve the lives of children and persons with congenital heart defects, known as CHD. Although you may not have heard of it, it is the #1 birth defect worldwide and the #1 cause of death by infants in the United…

  9. What is the difference between congenital heart disease and congenital heart defect?

    The terms congenital heart defect and congenital heart disease are often used interchangeably. Is there a difference? What is a Congenital Heart Defect? A congenital heart defect refers to a structural difference of the heart that has been present since birth. Congenital, by definition, means you are born with it. CHD medical care has improved…

  10. Why Should I Learn More About Congenital Heart Disease?

    Congenital heart disease is trouble with the structure of the heart that exists since birth. Congenital as a definition means “born with the defect”. This is why CHD is also referred to as a congenital heart defect. It can also change the way blood flows through your heart. Some congenital heart defects often do not…