Blog

  1. The Greatest Adventure Buddy

    Heart Dads play such an important role in their families – sometimes protector, sometime playmate, but always motivated by love. Father’s Day is just one of the chances we have to say thanks, to show our dads just how much they mean to us, and how their time and support were the greatest gifts a…

  2. Improving Access to Care for the LGBTQIA+ Community

    Access to the necessary care is already a critical issue for teens and adults in the CHD community. But for members of the LGBTQIA+ Community, the added uncertainty over stigma can lead to inappropriate care and even avoidance of treatment altogether. In this week’s guest blog, Joseph Lindsey, a public health professional, discusses the hurdles…

  3. Supporting Heart Siblings at Home – Part 2

    It may be difficult to balance the needs of your child with CHD and those of your heart healthy child. Siblings at home may feel left out or confused, and we may not always know how to best support them. In the final part of this blog series, Nicole Johnson, a Child Life Specialist, offers…

  4. Congenital Heart Disease

    Congenital Heart Disease Definition

    Every year, families are impacted by Congenital Heart Disease—find out what it really means. Congenital heart disease (CHD) is a condition that impacts an astounding 40,000 babies every single year. Current estimates show that there are roughly 1.5 million adults who have been diagnosed with this disease, making it a key point of concern when…

  5. How Common is Congenital Heart Disease?

    Congenital Heart Disease influences people every year—find out just how common it is. Before a baby is born, we cannot always know what life will have in store for them. Every year, a high number of children are diagnosed with congenital heart disease (CHD). The impacts that CHD can have are significant, yet most parents…

  6. CHD BEAT: A Passion for Education and to Help Others – Dr. Keila Lopez

    We often share stories and features from patients and parents of children with CHD, but there is more to the CHD community. In this edition of our CHD Beat highlight series, we introduce you to Dr. Keila Lopez, a CHD physician in Texas, who shares how she got started in medicine, how she connects to…

  7. Return to Me & Accurate Representation of CHD in Entertainment

    There’s always a bit of a thrill that comes with finding characters with CHD in a movie or a book. It’s an opportunity to our stories on screen, to know, somewhere in the world, thousands of people are reading about CHD. Some get it right, some are a bit off, but every effort to include…

  8. To Heart Moms This Mother’s Day, From a Grateful ACHDer

    I don’t know what it feels like to be a mother. I don’t know what it feels like to learn that my child has a CHD or have thoughts race through my mind as I wait to hear that she’s made it out of surgery.   But I have felt a mother’s love. I have felt…

  9. Research at Herma Heart Institute, Furthering Individualized CHD Therapies

    Research is vital to advancing CHD therapies and improving outcomes. Dr. Joy Lincoln and the Herma Heart Institute at Children’s Wisconsin are committed to that mission of advancement. In this week’s blog, read Dr. Lincoln’s article about the work they are doing to identify ways in which treatment can be tailored to the individual, and…

  10. CHD risk factors

    A congenital heart defect signifies an issue in the structure of the heart when a child is born. This can greatly impact a newborn’s heart function and developmental growth, including their ability to breathe.  Congenital heart disease symptoms can be severe, requiring long-term care and even multiple surgeries to correct heart function. Learning more about…