Blog

  1. Sydney Kim

    “Sydney has already overcome so many challenges in her young life. I used to worry so much about her future because of how sick she was as a little child. But seeing her now and how much she has grown, I feel that there is no limit to what Sydney can do or achieve. I will always be thankful to Conquering CHD for tirelessly advocating for those with CHD like Sydney.”

  2. Ryan Kirst

    February 3, 1999, our heart warrior was born.  We were already blessed with a six-year-old daughter and we were excited to add a son to our family. It wasn’t until Ryan was born that we learned he had something seriously wrong with his heart.  He was born blue and right away they knew something was…

  3. Grace

    Grace was born on March 7, 2017. At birth, to her parents heartbreak, she was diagnosed with complete atrioventricular canal defect (AVSD), as well as trisomy 21. She had open heart surgery on August 7, 2017 at just 5 months old. The first year of her life was hard on her family, especially the first…

  4. Holden Joseph Flynn

    It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Atrioventricular Canal, a complex single chamber…

  5. Carter Fidel Williams

    “When we first learned of our son’s congenital heart defect, we wanted to ensure that we were equipped to face this challenge. We are very grateful for CCHD, the information and support we received was invaluable as it properly prepared us for this journey.” – Shuntae Williams

  6. Trinity Higgins

    “Conquering CHD means that I have someone fighting to make sure I have access to information that I can understand and for legislation that impacts my future health.” – Trinity

  7. Joshua Morgan

    Joshua was born, at 36 weeks and 4 days, on November 25, 2017, at 7:55 pm. He was delivered early due to his dropping heart rate during my routine checkups.  Once Joshua was here, he was 3 pounds and 6.1 oz, and went straight to the Edward NICU. While he was there, it was discovered that he…

  8. Eva Burt Edinger

    “My CHD went undetected for the first year and a half of my life. After being diagnosed with an Atrial Septal Defect, I underwent open heart surgery, spent several weeks in intensive care, and was not expected to live. Now, as an adult, I have no physical restrictions and I live life to the fullest!…

  9. Sai Shah

    Sai’s journey started off with a lot of heartache, stress & worry but his life continues forward with a lot of hope, love, laughter & amazement.

  10. Barrett Lloyd

    Barrett Lloyd Chenevert was born just hours after his due date in July 2014 and his parents had no idea that anything was out of the ordinary. Their pregnancy was fairly typical with two normal ultrasounds and no other significant issues. After long and exhaustive labor that started with a two-hour car ride to the…

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