Blog
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Austin Thomas Erb
9.14.22-11.26.22 When we first learned that Austin would be admitted to Rocky Mountain Hospital for Children PICU for open heart surgery at 3 weeks old, we were nervous and anxious for what was ahead. However, nothing would truly prepare us for what the next 53 days would bring. The feeling of leaving your baby in…
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Hayden’s Legacy: A Safe Space for Grieving Families
We have learned that it is not the walls of Hayden’s House of Healing that make it successful, but rather the spirit of the people that come and bravely share their stories, creating an incredible community of love and support.
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Peyton’s Parents Give Hope to CHD Community
In her 12 days of life, Peyton Rae Brean showed her parents, Lisa and Corey Brean, spunk, sass, love, and strength. Her personality radiated inside the NICU, and her parents cherished every moment spent inside those four walls. “I read somewhere once that ‘instead of teaching my daughter about the world, I would have to…
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Five Tips For Coping With Holidays After the Loss of a Loved One
Here are some helpful tips for handling grief during the holiday season. Feel Your Emotions and Be Honest About How You Feel Everyone grieves differently and the holidays can be difficult for families after the loss of a loved one. Give yourself space to feel your emotions and be honest with yourself and others about…
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Five Ways to Support Bereaved Family or Friends This Season
Here are some helpful tips for how to support those who are grieving during the holidays. Support Their Choices Everyone grieves differently and the holidays can be difficult for families and friends after a loss. They may choose to skip holiday gatherings, change traditions, travel, etc. Support them in their choices surrounding the holidays. Extend…
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Dear Bereaved Family, From Your Bedside Nurse…
Bereaved families can often feel alone in their grief – feeling like the world keeps turning while their world has stopped. It may feel like the care team for your loved one goes right back to business as usual after a loss, but as this open letter to bereaved families from a bedside nurse illustrates,…
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Blaze’s Cause Candle Initiative
On March 29, 2020, Cecilia was born with congenital heart disease. Congenital heart disease is the most common disability at birth in the United States and worldwide with nearly 40,000 babies expected to be born with CHD in the U.S. this year. On November 16, 2020, Cece took her final breath after numerous surgeries in…
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Sweet Girl Paislee
Paislee Kate was prenatally diagnosed with Hypoplastic Left Heart Syndrome. At 33 weeks, doctors considered her in “imminent danger” so, in February 2018, she was delivered by emergency C-section. After she was born, more complications arose. The morning after she was born, she was moved to another hospital 45 minutes away. Scott and his wife,…
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Holden Joseph Flynn
It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Atrioventricular Canal, a complex single chamber…
