1. Camila

    Camila nació el 5 de octubre del 2018. Seis días antes de que naciera, fue diagnosticada con estenosis de la válvula pulmonar y comunicación interauricular. La noticia nos tomó a todos por sorpresa. En ese momento estábamos viviendo en California en el Área de la Bahía y cuando Camila nació fue inmediatamente transferida al hospital de niños Benioff en…

  2. The Foligno Family

    “We don’t look at the world with rose-colored glasses, but we are optimists through and through. We believe in turning obstacles into opportunity, that forward is a mindset, and that there are tools to help us at any place you find yourself on life’s journey.”

  3. Luke Toth

    Like many newly married couples, we were over the moon to learn we were expecting our first baby!  We vividly remember us deciding the entire ride there if we should find out whether we were having a boy or girl. Soon after arriving, we quickly learned that instead of finding out our baby was a…

  4. Sydney Kim

    Sydney was born in May 2011 and as with most first-time parents, we were both elated and completely terrified. She was delivered via C-section, so we only had a few moments with her before she was whisked away to the nursery. That turned out to be the one and only time we were able to…

  5. Ryan Kirst

    February 3, 1999, our heart warrior was born.  We were already blessed with a six-year-old daughter and we were excited to add a son to our family. It wasn’t until Ryan was born that we learned he had something seriously wrong with his heart.  He was born blue and right away they knew something was…

  6. Grace

    Grace was born on March 7, 2017. At birth, to her parents heartbreak, she was diagnosed with complete atrioventricular canal defect (AVSD), as well as trisomy 21. She had open heart surgery on August 7, 2017 at just 5 months old. The first year of her life was hard on her family, especially the first…

  7. Taosies

    Taosies was born in January 2010 with Critical Congenital Heart Disease. His anatomical diagnosis is Double Inlet Left Ventricle (DILV) with Transposition of the Great Arteries (TGA), also known as single ventricle anatomy or “half a heart.” There is no repair available for his anatomy, only palliative surgeries to make the most of what his…

  8. Holden Joseph Flynn

    It was at out 20 week ultrasound that we learned of Holden’s Congenital Heart Defect. We were naïve to parenthood and CHDs, but educated ourselves as much as we could to prepare for his arrival. Holden Joseph Flynn came out swinging on October 11, 2011, diagnosed with Unbalanced Complete Atrioventricular Canal, a complex single chamber…

  9. Carter Fidel Williams

    “When we first learned of our son’s congenital heart defect, we wanted to ensure that we were equipped to face this challenge. We are very grateful for CCHD, the information and support we received was invaluable as it properly prepared us for this journey.” – Shuntae Williams

  10. Trinity Higgins

    “Conquering CHD means that I have someone fighting to make sure I have access to information that I can understand and for legislation that impacts my future health.” – Trinity

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