Blog
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Advocates in Action
We recently sent out an Action Alert, asking you, our incredible advocates, to contact your legislators to request increased research funding. Many of you sprung into action. Here are a few cute snip-its: 1) Say Cheese! Mirabel, her twin sister and her mom, stopped by Capital Hill to visit Congresswoman DeLauro’s amazing staff person, Eric…
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Action Alert – Support Congenital Heart Disease Research Funding
Email your legislators: FUNDING CDC DATA COLLECTION Action Needed Email your lawmakers and ask them to provide $7M to fund CDC surveillance efforts. Visit your lawmaker’s website where you will find a contact us form. You can find their website at www.house.gov or www.senate.gov Using the suggested talking points and your own personal information, edit…
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Webinar: Awareness, Knowledge, Action – Congenital Heart Disease Advocacy
Awareness, Knowledge, Action: Why you should care about advocacy, and what you can do! Watch the Webinar today!!! This introductory look into advocacy provides quick and easy ways to get started. We are encouraging everyone to learn how to get involved and be a part of something bigger! By watching this video, you will: Learn…
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5 Myths About Telling Your Story
Your story can be a very useful tool when working with others to make a difference. Move past the myths and share your story on our website! 1) No one wants to hear my personal story. What you tell your friends is one thing. But, it’s different when you are telling your story to a…
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Save the Date! Webinar – March 20
Awareness, Knowledge, Action: Why you should care about advocacy, and what you can do! We are encouraging everyone to learn how to get involved and be a part of something bigger! March 20th; 8pm ET/ 7pm CT Join us – Learn why it is important to move beyond awareness to knowledge and advocacy. Get up to…
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4 things to do during National Birth Defects Prevention Month
Congenital heart defects are the most common birth defect. Period. Part of Conquering CHD means working to ensure they don’t happen in the first place. Let’s support the CDC and the National Birth Defect Prevention Network’s efforts to prevent birth defects. Here’s what you can do! 1) National Birth Defects Prevention Month Tweet-Up– #1in33 Promote…
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The ONE thing for 2014
It’s a New Year. For a lot of people that means “new” things. New things to do, new things not to do. We often resolve to make these “things” happen, or not happen. But, really, it’s usually about making a change. The best way to make a lasting change is to focus on ONE THING….
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A Policy Agenda: A sticky note lover’s dream!
I love sticky notes. I mean I really love sticky notes. (Well, actually, I love office supplies in general, but that is another story.) I even have sticky note apps for my desktop and phone!! The reason for my obsession: I have many random thoughts throughout the day, and I often panic that I may…
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By popular demand… press release:
Thanks to Mended Little Hearts for the original template: I modified it a bit for CHD Awareness week. As I was typing this, it also dawned on me that you should contact your governor or city official’s office and see if they will submit the press release. Much more likely to be picked up. 🙂…
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Take Action!!!
So, you’ve worked on your story, know what you want to ask for, got a few facts straight, done a little homework on your lawmakers – or at the very least, know their names. Now, it’s time to get set, and GO!!! My journey started small. When I first started, I was simply asked to…
