Blog
-
Advocacy Success – Increased CHD Funding!
Your efforts are working! Congress is working hard to wrap things up before the end of the year. We are thrilled to report that the anticipated budget includes an increase of $1.1 million from $2.9 million to $4 million in 2015 to fund public health research and data collection through the Centers for Disease Control…
-
Advocacy Success – Newborn Screening
CCHD has been supporting the efforts of the March of Dimes to ensure passage of the Newborn Screening Saves Lives Act. We have reached out to you in the past to contact your legislators about this key support for screening including CCHD screening. We wanted to you with an exciting update!! From our Friends at…
-
Walking to Washington
Miles Walked: 610/860 Donations Earned: $500.00 Join me as I ‘walk the walk’ in preparation to ‘talk the talk.’ I am walking from the Conquering CHD National Office in Madison, WI ‘arriving’ in Washington D.C. just in time for the Congenital Heart Legislative Conference February 25-26, 2015. Follow my progress here. Just a few weeks left, a few hundred…
-
In The Thick Of It
I’m having one of those days. All I needed to do was reheat a bowl of soup for lunch. We have been without a microwave for about a month, now, so heating anything is not quite as simple as it could be. I dumped the leftovers into the small sauce pan, turned the burner on…
-
You = Winning! The Importance of Advocacy
Throughout the month of October, CCHD is helping advocates meet with their legislators in district. In this post, Tiffany takes a humorous look at why it is important to rise above the politics and meet with our legislators. For more information about in-district meetings, visit our website or contact advocacy@conqueringchd.org. Although the polls may indicate the current recess on…
-
In-District Visits
Email advocacy@conqueringchd.org today, to let us know YOU want to participate in in district visits! There has been a lot of talk in the media, lately, about raising money for research. It certainly sends a very powerful message when millions of people come together to raise research funds for a cause. We need you…
-
Take Action to support Newborn Screening
CCHD supports the screening of newborns for critical congenital heart defects. This legislation indirectly supports CCHD screening oversight efforts. From our friends at the March of Dimes: We’re at a critical point where YOUR voice can make a real difference! The House passed the Newborn Screening Saves Lives Reauthorization Act (H.R….
-
Save the Date – Legislative Conference 2015
CCHD is proud to bring you: Congenital Heart Legislative Conference 2015 February 25-26, 2015 Hyatt Regency Hotel Washington D.C. We are looking forward to collaborating with other congenital heart organizations to provide you with: Up-to-date policy information and how it impacts children and adults with heart defects Leadership training to develop skills needed to share…
-
Hospital Costs and Resource Use for Children and Adolescents with Congenital Heart Defects
In a recent study titled ‘Pediatric inpatient hospital resource use for congenital heart defects,’ published in Birth Defects Research Part A, CDC researchers found that in 2009, hospitalized U.S. children and adolescents who had a congenital heart defect had more expensive hospital stays than those who were hospitalized without a congenital heart defect. The most expensive hospital…
-
50 States, 50 Stories Campaign
6/23/14 Update: We now have ONLY 9 STATES LEFT!!! We are still seeking stories from: Delaware, Hawaii, Maine, Montana, Nevada, Oregon, Utah, Vermont and Wyoming. Share your story, now! The Challenge is on!! We are uniting our voices to fight for more data, more research and better transparency of quality information in order to Conquer…
