Blog
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CHD BEAT: Elevating the Family Voice – Rita Higgins, RN
We often share stories and features from patients and parents of children with CHD, but there is more to the CHD community. In this edition of our CHD Beat highlight series, we introduce you to Rita Higgins, a Registered Nurse and parent of a young adult with CHD, who shares how her daughter’s CHD journey…
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CHD BEAT: Mental Health Support is Necessary Part of CHD Care – Dr. Erica Sood
We often share stories and features from patients and parents of children with CHD, but there is more to the CHD community. In this edition of our CHD Beat highlight series, we introduce you to Dr. Erica Sood, a cardiac psychologist in Delaware, who shares how she got started in medicine, how she connects to…
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CHD BEAT: A Passion for Education and to Help Others – Dr. Keila Lopez
We often share stories and features from patients and parents of children with CHD, but there is more to the CHD community. In this edition of our CHD Beat highlight series, we introduce you to Dr. Keila Lopez, a CHD physician in Texas, who shares how she got started in medicine, how she connects to…
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Stroke Awareness Month – Warning Signs and Patient Stories
May is stroke Awareness Month. Revisit the warning signs of stroke and hear from patients who have survived and thrived after suffering strokes in this Blog Recap reboot. “We can only know how strong we are when we strive and thrive beyond the challenges we face.” Kemi Sogunle
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The Gift of Life: It’s National Pediatric Transplant Week
For some with congenital heart disease, a life-saving heart transplant is an inevitable part of treatment. This week is National Pediatric Transplant Week – a chance to honor and celebrate the gift of life provided through pediatric organ donation and transplant. Each year National Pediatric Transplant Week takes place during the last week of National…
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Walking Towards Hope
Like many families, the Adelmans knew nothing about CHD until their daughter went in for her 20-week anatomy scan. It was then that they learned that their future grandson Max had a rare condition called Heterotaxy Syndrome. After birth in late 2020, Max’s care team at Vanderbilt Children’s Hospital was pleased at how well he…
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What if Your Crazy Ideas Could Become Life-changers? You’ve Got What it Takes!
You’ve got what it takes to create visibility and empower all impacted by the most common birth defect by starting a fundraiser today! As a Conquering CHD Fundraiser, you have the power to inspire, uplift, and support individuals and families impacted by congenital heart disease every day! From hosting a bake sale to leading a…
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That’s a Wrap on Heart Month 2022!
Heart Month 2022 is over, but our work to conquer the most common birth defect is not. Let’s look back at a month of coming together as a community, of awareness, hope, the sometimes hard realities, and raising our resounding #CHDVoice as one. As most of us within the CHD community know, February is about…
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Ben Across America – A 3000 Mile Bike Ride For CHD
When Earl learned his grand-nephew would be born with Congenital Heart Disease, he immediately sprung into action. He knew he had to do something to help Ben and all those impacted by the most common birth defect. On March 11th, after much planning and preparation, Earl and his friends set out on a journey across…
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CHD Myths: BUSTED!
Unless you or someone you love is diagnosed with congenital heart disease, you may not know much about CHD. Patients and families can face a world with untrue preconceived notions or no knowledge at all about CHD, even from well-meaning friends and family. In today’s blog, we set out to bust some of the most…