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  1. #ConqueringCHD Week 2019

    Here are a few great ways to join us in celebrating 6 years of Conquering CHD! It’s your week to shine as a PCHA #ConqueringCHD social media ambassador! PCHA celebrates six life-changing years this month! But it’s not about us…. It’s about YOU! Volunteers all over the country serve families with CHD in many different ways….

  2. CHD and the Taboo Q&A: Your Questions Answered

      Today we revisit a couple of Q&A videos that were originally posted in October of 2017. The first video is an interview with Dr. Madsen, on alcohol and drugs. And the second video is an interview with Dr. Gurvitz on college, tattoos, and contraception.  Dr. Nicolas Madsen – Activity, Drugs & Alcohol, Related Conditions,…

  3. PCHA: At the Heart with David

    PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how PCHA has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with David Kasnic, our Executive Director and Co-founder…

  4. PCHA: At the Heart with Amy

    PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how PCHA has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Amy Basken, our Director of Programs and…

  5. We are #CHDAware – Heart Month 2019

    Heart Month has arrived! Here are a few key ways to help us raise awareness throughout heart month and all year long! Participate in our Social Media campaign!  Use your social media talents to shine and join the #CHDAware social media storm February 7-14, the entire community comes together to help others understand how common…

  6. Jaguars’ Josh Lambo to Wear Cleats for Heart Defects!

    My Cause My Cleats 2018     Jaguars’ Josh Lambo to Wear Cleats for Heart Defects! Jacksonville Jaguars Kicker and Pro Bowl contender, Josh Lambo, brings much needed attention to congenital heart disease with his My Cause My Cleats charity selection for 2018. This NFL tradition will place CHD in the national spotlight, this football…

  7. #GivingTuesday: Give Knowledge. Give a Voice. Give Hope.

    Here are a few key ways to make an impact on #GivingTuesday:   Donate or Create a #GIVINGTUESDAY Facebook Fundraiser Make every dollar matter when you give to PCHA by helping us put essential resources into the hands of hospitalized patients and families. Whether two days old, or twenty years young, having knowledge, a voice…

  8. Over the Counter Medications

    As patients with pre-existing conditions, who may be on a list of prescription medications, it’s important to know which over-the-counter (OTC) medications are safe for CHD patients  Recently at an Adult Congenital Heart Disease Conference, Justina Damiani, Inpatient Cardiology Pharmacist at Lurie Children’s, shared her recommendations for OTC meds, for those everyday illnesses or aches and…

  9. July Recap- Summer Fun!

    The summer season can be a ton of fun, a great time to get outside, or go on vacation with the family. But it can also be overwhelmingly hot when engaged in outdoor activities. In the month of July, we learned how CHD patients, and parents, like to beat the heat in those very hot…

  10. Taking a Break for Fun: Summer Possibilities with Margaret King

    This week we are continuing with the theme of summer fun! Today we’ll hear from Margaret King, a Heart Mom, who spends her summer hanging out with her fun-loving son.   In the CHD life, sometimes it’s hard to get a break. While summer brings a brief reprieve from school expectations and IEP goals, we…