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  1. 7th Summit on Transparency and Public Reporting: Recap

    The 7th Summit on Transparency and Public Reporting of Pediatric and Congenital Heart Disease Outcomes was held virtually on September 29, 2020 with nearly 200 attendees. Catch up on Conquering CHD’s historic efforts in the field, then read on for the Summit summary and full recording. Our first virtual Summit was a big success. Nearly…

  2. Hospital Rankings – A Letter to U.S. News and World Report

    In response to conversations at our 2019 Summit on Transparency and Public Reporting last fall, CCHD submitted a letter to US News Editorial Staff, expressing the concerns of the patients and families we serve regarding the challenges of ranking hospitals. We are pleased that we were able to have a constructive follow-up conversation with them…

  3. Response to 2019 U.S. News and World Report Congenital Cardiac Center Rankings

    Conquering CHD would like to express our concerns over the recently published U.S. News and World Report U.S. News Rankings. We are encouraging patients and families to use caution when utilizing this tool when making important treatment decisions. Response to 2019 US News and World Report Pediatric Congenital Cardiac Center Rankings: Families deserve transparent information…

  4. Action Alert: Tell your Senator to Sign-On

    In December 2018, the Congenital Heart Futures Reauthorization Act became law.  The law authorizes, or allows for, $10 million in research, data collection, and awareness activities at the CDC over the next 5 years.  This is 2.5 times the current funding of $4 million. Therefore we need to strongly advocate for full funding of the $10…

  5. Action Alert: Tell your Representative to Sign-On

    In December 2018, the Congenital Heart Futures Reauthorization Act became law.  The law authorizes, or allows for, $10 million in research, data collection, and awareness activities at the CDC over the next 5 years.  This is 2.5 times the current funding of $4 million. Therefore we need to strongly advocate for full funding of the $10…

  6. Jaguars’ Josh Lambo to Wear Cleats for Heart Defects!

    My Cause My Cleats 2018     Jaguars’ Josh Lambo to Wear Cleats for Heart Defects! Jacksonville Jaguars Kicker and Pro Bowl contender, Josh Lambo, brings much needed attention to congenital heart disease with his My Cause My Cleats charity selection for 2018. This NFL tradition will place CHD in the national spotlight, this football…

  7. School Intervention Series: A Complete Resource Guide

      CCHD welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin School.  Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included at the end of this post for easy reference.  2020 Update: School with CHD during COVID?! We’ve got you…

  8. Taking a Break for Fun: Summer Possibilities with Margaret King

    This week we are continuing with the theme of summer fun! Today we’ll hear from Margaret King, a Heart Mom, who spends her summer hanging out with her fun-loving son.   In the CHD life, sometimes it’s hard to get a break. While summer brings a brief reprieve from school expectations and IEP goals, we…

  9. Be #CHDWise and be a part of our Give a HOOT about CHD Campaign!

    Here are a few key ways to join the movement: Hello Echo! We enlisted your help to name our cute, cuddly, and wise owl and boy did you deliver! With over 70% of the votes – we officially have a winner! With your overwhelming support, the name of the official mascot of Conquering CHD is…

  10. Teen Topics – Advocating for Yourself

    Annaleci was taught at a young age how to speak up for herself. She found, as she grew up, just how important that is , especially when it comes to her healthcare and advocating for her needs.This week, Anna shares her story with us.    My life growing up, from an outsider’s point was hectic,…