Blog
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School Intervention Series: Making a Difference
Continuing our September Back-to-School theme, we are excited to introduce guest writer Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin. Kyle is blogging a 3-part series for CCHD beginning with an introduction on what she does and why. Over the next couple weeks, Kyle will share tips, tricks and recommendations for navigating a school’s system without a dedicated school…
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Research Matters: Why Should My Child Participate in Clinical Research?
This month we are doing a throwback to the posts regarding research. Today, CCHD welcomes back NIH medical officer and pediatric cardiologist Dr. Kristin Burns. Dr. Burns answers some frequently asked questions about clinical research and provides information about ongoing clinical research studies. This article was originally posted in 2016. Have you ever noticed flyers…
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Songs of Love for the Heart
“When words fail, music speaks.” Once said by Hans Christian Andersen, best remembered for his fairy tales like The Little Mermaid and The Snow Queen that inspired Frozen, this renown Danish writer understood the importance of music. With any serious child illness, there are times when words fail us. CCHD was asked to try out a…
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Transparency Blog Series Recap
For the month of July, CCHD recognized the importance of transparency. Our goal is to inform, educate, and empower patients and families to actively participate in data-driven, shared-decision making. The fight to conquer CHD is strengthened by the involvement of all of those who share our mission. It takes a community coming together around education, research and awareness…
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The Importance of Information to Support Shared-Decision Making
Conquering CHD firmly believes that patient-engaged care leads to improved patient experience and outcomes. In this tragic story, one family believes that they did not have the information needed to properly understand the expectations for their child. We encourage patients and providers to work closely together to find a balance between hope and expectations to…
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A Lesson in Learning To Be a Better Patient
As CHD is a lifelong condition, an important aspect of transparency is knowledge of a complete medical history. CCHD welcomes Meghan Chell, a CHD survivor, who speaks about her recent challenges in finding the right care as an adult CHD patient. If you don’t learn your medical history, you’re doomed to repeat it. Three years ago,…
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Passion and Progress: A Provider’s Perspective
In July, CCHD is highlighting the need for transparency. Our goal is to inform, educate, and empower patients and families to actively participate in data-driven shared-decision making. Julie Slicker, a member of the CCHD Medical Advisory Board and lead on the Guided Questions Tool, speaks about the importance of transparency from a provider’s perspective. “We didn’t know…
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Fathers Blog Series Recap
Your voice matters. For the month of June, CCHD recognized dads of children with CHD through our Fathers Blog series. The fight to conquer CHD is strengthened by the involvement of all of those who share our mission. It takes a community coming together around education, research and awareness to make an impact. Volunteer, join our advocacy network today, and…
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Being Present
It has been incredible hearing from dads all month! Bill Foley, Executive Director of the Children’s Heart Foundation, writes about his experience as a father. As a dad, my instinct is to be the strong one who fixes everything. However, when my son was born with congenital heart disease (CHD), I realized I was incapable of fixing…
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Father’s Q&A Panel
Throughout June, the Conquering CHD has been honoring Fathers by covering relatable topics through our guest blog posts. As we near the end of our series, we have four incredible dads of children diagnosed with CHD joining us for a Father’s Q&A Panel. Thank you for taking the time to share with us! Please introduce yourself. David Kasnic: I…
