Blog

  1. Patient Engaged Research Funding

    Research funding is an essential part of Conquering CHD.

  2. Research at Herma Heart Institute, Furthering Individualized CHD Therapies

    Research is vital to advancing CHD therapies and improving outcomes. Dr. Joy Lincoln and the Herma Heart Institute at Children’s Wisconsin are committed to that mission of advancement. In this week’s blog, read Dr. Lincoln’s article about the work they are doing to identify ways in which treatment can be tailored to the individual, and…

  3. Building Relationships with Scientific Partners Connects Families to Research

    Conquering CHD is committed to research that matters. Thank you to Prolacta Bioscience for sharing information on the clinical trial researching human milk diets for single ventricle infants.

  4. The PATCH Study: Initial Findings for Families

    Researchers from University of Queensland have presented their initial findings from The PATCH Study. In 2019-2020, Conquering CHD collaborated with The PATCH Study team from University of Queensland in Australia. We asked parents of children with CHD ages 5 to 18 years to complete an anonymous online survey, primarily focusing on behavioral and executive function…

  5. The Promise of Research for CHD, and Our Responsibility to Advocate

    Advancement in standards of care and best practices can only happen with research.  This week, Margaret King discusses the implications increased CHD research has on not only the community but society as a whole, as well as how important it is for each one of us to contact our representatives to increase research funding.   …

  6. Research Blog Series Recap

    For the month of October, CCHD recognized the importance of Research. All different kinds of research are vital to finding a treatment and an eventual cure for CHD and we thank all the clinicians, scientists, and patient volunteers for their important contributions to CHD research. The fight to conquer CHD is strengthened by the involvement of…

  7. Research Matters: Genetic Link Between CHD and Neurodevelopmental Disorders

    As we continue with our focus on genetics and genomics research, CCHD welcomes NIH medical officer Dr. Jonathan Kaltman. Dr. Kaltman provides an overview of a recent study that uses genomic data to establish a genetic link between congenital heart disease (CHD) and neurodevelopmental disorders. This study provides an important example of how genetics and…

  8. Research Matters: Genetics and Genomics Research – Why It Matters

    This week, CCHD focuses on genetics and genomics research and discusses why these studies are important for understanding the underlying genetic causes of CHD. At some point during a hospital visit, you may have been asked to enroll your child in a genetic study. To help parents and caregivers make a more informed decision about…

  9. Research Matters: Psychosocial Functioning of Adolescents with D-Transposition of the Great Arteries

    Continuing our theme of Research, CCHD welcomes back pediatric psychologist Dr. Erica Sood. Dr. Sood provides an overview of research studies that highlight the importance of monitoring children and adolescents with CHD for psychosocial issues and that further reveal how parent/caregiver stress can affect the emotional and behavioral functioning of a child with CHD.  …

  10. Research Matters: The Importance of CHD Surveillance

    For the month of October, CCHD will be focusing on the theme of Research. In the first post of our series, Dr. Matt Oster provides an overview of a recent study that estimates the prevalence of CHD across all age groups in the United States and highlights the importance of surveillance in improving outcomes for…

Subscribe To Our Newsletter

Become a member of Conquering CHD's network to stay connected.

You have Successfully Subscribed!