Blog
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National Reading Month: You’re Here for a Reason
For the month of March, CCHD will be focusing on the theme of National Reading Month. In the 3rd post of our series, CCHD’s Jessica Chenevert talks with us about one special book. Read on to hear why You’re Here for a Reason holds a special place in her heart. When I bought this children’s…
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National Reading Month: It’s My Heart Book
For the month of March, CCHD will be focusing on the theme of National Reading Month. In the first post of our series, the Children’s Heart Foundation shares an overview of the It’s My Heart book, a resource for families affected by CHD. CCHD and the Children’s Heart Foundation are partnering to include the It’s My…
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Research Blog Series Recap
For the month of October, CCHD recognized the importance of Research. All different kinds of research are vital to finding a treatment and an eventual cure for CHD and we thank all the clinicians, scientists, and patient volunteers for their important contributions to CHD research. The fight to conquer CHD is strengthened by the involvement of…
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Research Matters: Genetic Link Between CHD and Neurodevelopmental Disorders
As we continue with our focus on genetics and genomics research, CCHD welcomes NIH medical officer Dr. Jonathan Kaltman. Dr. Kaltman provides an overview of a recent study that uses genomic data to establish a genetic link between congenital heart disease (CHD) and neurodevelopmental disorders. This study provides an important example of how genetics and…
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Research Matters: Psychosocial Functioning of Adolescents with D-Transposition of the Great Arteries
Continuing our theme of Research, CCHD welcomes back pediatric psychologist Dr. Erica Sood. Dr. Sood provides an overview of research studies that highlight the importance of monitoring children and adolescents with CHD for psychosocial issues and that further reveal how parent/caregiver stress can affect the emotional and behavioral functioning of a child with CHD. …
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Research Matters: The Importance of CHD Surveillance
For the month of October, CCHD will be focusing on the theme of Research. In the first post of our series, Dr. Matt Oster provides an overview of a recent study that estimates the prevalence of CHD across all age groups in the United States and highlights the importance of surveillance in improving outcomes for…
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A Timely Reminder from Texas Children’s Hospital
Dr. Eboni Smith from Texas Children’s writes a timely reminder of monitoring for signs of developmental challenges and seeking out help during this back-to-school season. School is now in full swing and the change in seasons is just around the corner. The beginning of a new school year is an exciting time for both parents…
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School Intervention Series: Advocating for a Program
In her final post of a three-part series, Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin, details how to start advocating for a dedicated school liaison at your cardiac center. If you missed the series, you can find her first post here and Complete Resource Guide here. Advocating for equal accesses to quality education for children with complex health needs is…
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School Intervention Series: A Complete Resource Guide
CCHD welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin School for part 2 of her 3 part series about School Intervention. If you missed her first post, you can find it here. Today, Kyle shares a wealth of information for navigating a school’s system without a dedicated school liaison. Her complete resource list is included at the end of…
