Blog
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Head and Heart with Dr. Creel
For the month of April, we are exploring mental health, and what mental health means for a CHD family. Today we’ll hear from Dr. Creel, a Certified Grief Recovery Specialist, as she shares her experience with CHD families. Fifteen years ago, when I first began my work in the field of working with heart patients,…
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“Taboo” ACHD Activities
**Disclaimer: ADULT CONTENT** Today’s post is on a subject that people with CHD don’t always discuss, but it is a very important topic nonetheless: sex. Below is one woman’s account of what it’s like to be with her husband and have CHD. Due to the sensitive nature of this topic our blogger has asked to…
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CHD and the Taboo Q&A: Your Questions Answered
Today we revisit a couple of Q&A videos that were originally posted in October of 2017. The first video is an interview with Dr. Madsen, on alcohol and drugs. And the second video is an interview with Dr. Gurvitz on college, tattoos, and contraception. Dr. Nicolas Madsen – Activity, Drugs & Alcohol, Related Conditions,…
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Taking Back Some Control
For the month of March we will be discussing the various “taboo” subjects that come up in thinking about life with CHD. This week we will hear from Jennifer, a CHD warrior, who talks about how she took back some control by choosing some of her scars. I was trying on dresses for my best…
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CCHD: At the Heart with Melanie
CCHD was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how CCHD has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Melanie Toth, our State Chapter Coordinator. …
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Somewhere to Turn
Today, we will hear from Rita Higgins, a heart mom, who shares her story and recognizes the role that the CCHD plays in a heart family’s life. It was the first time that I saw my husband really cry. I can still hear his voice crackle with joy and love. I can still smell her…
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CCHD: At the Heart with Jess
CCHD was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how CCHD has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Jessica Chenevert, our Marketing Coordinator. What…
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CCHD: At the Heart with David
CCHD was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how CCHD has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with David Kasnic, our Executive Director and Co-founder…
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PCHA: At the Heart with Amy
PCHA was founded by everyday people, joining forces for change.Together, we make a greater impact on the CHD Community. During heart month, we’re highlighting our staff members to share how CCHD has impacted their CHD journey and what they think makes us special. Today, we’re getting personal with Amy Basken, our Director of Programs and…
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School Intervention Series: Making A Difference
In the last week in our series on how CHD affects us at school and work, we hear from Kyle Herma, a School Intervention Specialist at Children’s Hospital of Wisconsin. Although this blog was originally posted in the summer of 2017, these tips, tricks, and recommendations for navigating a school’s system as a person who…
