Blog

  1. What Is Pediatric Congenital Heart Disease?

    Congenital heart disease (CHD) is known to affect people of all ages from around the globe, but the challenges begin very early. This condition affects nearly 1% of births in the United States alone, impacting 40,000 births on average a year. The nature of CHD can vary from one case to the next, with some…

  2. When Is CHD Awareness Week?

    It isn’t a secret that congenital heart disease (CHD) is a problem that impacts countless newborns, children, and adults around the world. With 1 in every 100 newborns being impacted by this condition, there is a big push to raise awareness and create a space where everyone can discuss CHD so that we can all…

  3. How many types of CHD are there?

    Congenital heart defects are problems with the heart that you are born with. They are the most common kind of birth defect, and there are various different types of CHD. Most of these types affect the walls, valves, or blood vessels of the heart. In some cases, they are serious and require different surgeries and…

  4. Can congenital heart disease be cured?

    There is no cure for Congenital Heart Disease. Although you can have surgery to repair your heart, you will never be cured. It is very common to have surgery to repair your heart, but there may always be long-term effects of heart surgery. This can include abnormal heartbeats. In many cases, a cardiologist can detect…

  5. Participate in Research about COVID-19

    Help improve the understanding of how COVID-19 impacts CHD Patients and families want to know how COVID-19 could affect their child or themselves. Right now, we don’t know. But you can help. This study is unique because it collects information directly from people with CHD, of all ages and all types of CHD. Other research…

  6. Take Action: Share your #CHDVoice with your Legislators

    As you read this, more than 150 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the PCHA’s 2020 Advocacy Conference.  They are asking their lawmakers to fully fund $10M for CHD research and data collection at the CDC, help patients and families get the info they deserve and…

  7. Check Out the New ACHD Info Kits

    As we continue our commitment to the lifespan of patients and families affected by CHD, CCHD has launched our New ACHD Info Kit!! This kit, created especially for Teen and Adult Patients, includes several new resources designed to help patients transitioning to adult care as well as adults already there, into a handy padfolio. Check…

  8. News Alert: 3D Printing a Human Heart Valve

    Originally posted on October 10th, 2019 by Dr. Francis Collins on NIH Directors Blog “While there’s a long way to go until then, a team of researchers has reached an important milestone in bioprinting collagen and other extracellular matrix proteins that undergird every tissue and organ in the body. The researchers have become so adept at it that…

  9. Edward Bauman Celebrates One Year Post-Op

    One year after surgery, Adult CHD patient, Edward Bauman, decided to mark the occasion by creating a video that shares his experience preparing for and immediately following his procedure. Watch to hear about his journey and his tips and tricks that may help on yours! For more from Edward and his follow up video at…

  10. The Unexpected Defibrillator

    Growing up with CHD and constantly facing your own mortality is a very scary reality. For many warriors, anxiety can arise from the myriad of worries. Today we’ll hear from Danielle Sikorski, a heart warrior who shares her personal experience and how she tries to mitigate some of the stresses her daily life. Please note that…