Blog

  1. Your Health vs. Your Career

    This week we hear from Samantha Michaud, a CHD warrior, who speaks about how CHD has affected her career opportunities in life. And how your health ultimately has to come before your career.  I was born a healthy (or so they thought) baby. I spent the first 2 months of my life slowly dying and…

  2. Hidden Scars

    At the start of the new year we often reflect on the year that has just passed, and for most of us, work and/or school is a large part of that reflection. We are kicking off the year with a series on how CHD affects patients, and families at school and work.  This post is…

  3. Always Enough

    There are so many people to be grateful for, and those people form a community and can help you through the frustrations of life.  Gratitude turns what we have into enough. -Unknown At the end of any given day, when the dragons have been slayed, I crash into a puddle of physical and emotional exhaustion….

  4. Angels in Scrubs

    It’s the Eve of Thanksgiving and I can’t help but feel overwhelming gratitude to the team of people that take care of our sweet Madison. I know that there are a few hundred stories and posts of a very similar sentiment but I’ve never been one to let someone else tell my story. So here’s…

  5. The Gift of Life – Sara Engstrom

    In the spirit of Thanksgiving, we are continuing our series on gratitude. This week we hear from Sara, a CHD warrior who shares how gratitude has played a role in her life.  At six months old, I was diagnosed with Shone’s complex, a myriad of heart defects that impacts each patient differently. My defects include…

  6. A Journey Shared – Joseph Burns

    In the month of November we are focusing our attention on gratitude, and how despite all the hardships that life brings, there are so many beautiful things for which we have to be grateful. Today we hear from Joseph, a CHD warrior, studying to be a physician himself.   Throughout my life, I have been the…

  7. 30 Days of A Grieving Mother

    Losing a child is a trial like no other. There is no one set way to grieve. There is no one way to carry on. In this special post, Heather Speakman, shares part of her family’s journey after the loss of her daughter, Madison.

  8. Options- With Dr. Gurvitz

    In the final week of our October theme, we hear from Dr. Gurvitz, who explores the many different options that women with CHD have, when they are thinking about starting a family.  As both a pediatric and adult congenital cardiologist, I have learned to care for all ages of patients in many different circumstances.  As…

  9. Welcoming Oliver

    This week we are continuing to explore the challenges of pregnancy for women with CHD. Today we will hear from Deanna, a heart warrior, who discusses the complications of pregnancy. However in the end, it was all worth it.  Like so many women with Congenital Heart Disease (CHD), I have been told many things about…

  10. A Mother’s Love

    “Pregnancy is hard. Having a congenital heart defect (CHD) during pregnancy is even harder.”
    Loryn McGill is a heart warrior and mother. Loryn shares her experience with pregnancy, and discusses the challenges and beauty, of motherhood.

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