Blog

  1. Congenital Heart Awareness – from our Partners at the CDC

    Today’s guest post comes to us from the Centers for Disease Control and Prevention (CDC).  With-in the CDC, the National Center for Birth Defects and Developmental Disabilities (NCBDDD) is dedicated to helping people live to the fullest. They have been incredible champions for congenital heart defects and we are privileged to have them as a partner!…

  2. Understanding and Treating Heart Defects – National Institutes of Health

    Today’s guest post comes to us from the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health. The NHLBI oversees several large research programs focused on heart disease in children and funds scientists at hospitals and universities throughout the United States who research the causes and problems associated with congenital…

  3. Fixed? Not so much

    We. Must. Keep. Fighting. 9 years ago, today, at 12:30pm I heard it.  Standing in the hallway with his lunch tray in hands (I had missed post-surgical rounds, but that’s another story,) the world renowned Dr. Tweddle told me that Nicholas was fixed.  Yep, “fixed.”   A week later our amazing pediatric cardiologist told me…