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  1. August Recap- Finances and CHD

    CHD take such a huge toll on patients and their families, mentally, physically, and financially. Finances can be such a daunting conversation when it comes to CHD. This series in August attempts to make that conversation a little less scary, so that families may feel like they have some tools to conquer the financial aspect…

  2. Social Security Disability Benefits – Adults

    Qualifying for Social Security Disability Benefits as an Adult with CHD   Tens of thousands of adults are thriving with congenital heart defects. While many are able to live full lives, it’s possible that at some point your heart function will decrease and you’re unable to maintain employment. If you’re no longer able to work…

  3. CHD365 – Recurring Giving Program

    Welcome to CHD365!                   CHD365 is our recurring giving program.  Your contribution through this program helps us to give knowledge, a voice and hope to hundreds of thousands of people impacted by congenital heart disease.   WHY GIVE A RECURRING DONATION? Recurring donation benefits both you and…

  4. ACTION ALERT: Congenital Heart Futures Reauthorization Act is moving forward – we need your help!

    ACTION ALERT: Congenital Heart Futures Reauthorization Act is moving forward – we need your help! The Congenital Heart Futures Reauthorization Act passed the House, this past February and is now making its way through the legislative process in the Senate. We are thrilled to report that this Wednesday, July 25, the Senate Health, Education, Labor…

  5. Father’s Day – A Heart Dad How-To

    For Heart Dads new to CHD,  feeling a little lost, or those not sure where they fit in the CHD world, Aaron Carpenter shares what he found, after 8 years on the CHD roller coaster, worked best for him and his family. His tips just might help you too! I am the dad of two…

  6. Father’s Day – Amit’s Story

    Being a first time father, while exciting, can be stressful on its own. Add to it the prospect of your child being born with multiple heart defects, and the excitement over your first child turns to fear. This week, Amit Shah shares his story, learning his son’s diagnosis and how it has changed the meaning…

  7. Adult Patient Experiences – Scarred

    Uncertainty and life challenges do not disappear with age. New phases of life, new experiences, instead,  bring different ones our way, as Medical Student, Joe Burns, knows. Here, he shares with us a shift that happened in his life, after surgery as an adult due to his CHD. His story emphasizes the importance of  support…

  8. Mother’s Day – Sarah’s Story

    We don’t always celebrate Mother’s Day with a tangible gift. Sometimes the day serves as a reminder of the blessings that Motherhood is on its own. Below, Sarah shares her story about what Motherhood had taught her. There are so many valuable life lessons I have learned in my 8.5 years as a mother.  Not only…

  9. Mother’s Day – A Grieving Mother

    Most of us spend Mother’s Day with our children, but for Kristin Burns, who lost her son to CHD, the day means something different. Read her story below.  I remember the day that I become a part of the CHD community. It was August 18th, 2016. Since that day, my life has been changed forever….

  10. Beyond the Heart – Pediatric Pulmonary Complications

    In a follow up to PCHA’s series on complications resulting from CHD, Dr. Nidhy Varghese, of Texas Children’s, adds insight to the pulmonary implications in patients affected by Congenital Heart Disease.    Pediatric Pulmonary Complications of Congenital Heart Disease Dr. Nidhy Varghese, pediatric pulmonologist at Texas Children’s Congenital heart disease is the most common birth defect…