Blog
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November Recap – Grateful Hearts
Throughout the month of November, we took a look at everything we have to be grateful for, through the hard times and the good. And we discovered that we have so much to be grateful for in this crazy thing called life! I just want to make a quick note to the CCHD community, next…
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Delbert Collins
Our handsome baby boy Delbert was born at the Children’s Hospital Colorado in December 2017. Del was originally diagnosed with aortic stenosis but after he was born doctors were able to determine it was actually hypoplastic left heart syndrome (HLHS). He spent his whole life in the hospital, and during this time he went through 11 surgical…
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October Recap – Pregnancy and CHD
Over the month of October, we discussed the many aspects of pregnancy, from many different perspectives. The Grenier Family A Mother’s Love Welcoming Oliver Options- With Dr. Gurvitz 30 Days of A Grieving Mother
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August Recap- Finances and CHD
CHD take such a huge toll on patients and their families, mentally, physically, and financially. Finances can be such a daunting conversation when it comes to CHD. This series in August attempts to make that conversation a little less scary, so that families may feel like they have some tools to conquer the financial aspect…
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CHD365 – Recurring Giving Program
Welcome to CHD365! CHD365 is our recurring giving program. Your contribution through this program helps us to give knowledge, a voice and hope to hundreds of thousands of people impacted by congenital heart disease. WHY GIVE A RECURRING DONATION? Recurring donation benefits both you and…
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ACTION ALERT: Congenital Heart Futures Reauthorization Act is moving forward – we need your help!
ACTION ALERT: Congenital Heart Futures Reauthorization Act is moving forward – we need your help! The Congenital Heart Futures Reauthorization Act passed the House, this past February and is now making its way through the legislative process in the Senate. We are thrilled to report that this Wednesday, July 25, the Senate Health, Education, Labor…
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Father’s Day – A Heart Dad How-To
For Heart Dads new to CHD, feeling a little lost, or those not sure where they fit in the CHD world, Aaron Carpenter shares what he found, after 8 years on the CHD roller coaster, worked best for him and his family. His tips just might help you too! I am the dad of two…
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Father’s Day – Amit’s Story
Being a first time father, while exciting, can be stressful on its own. Add to it the prospect of your child being born with multiple heart defects, and the excitement over your first child turns to fear. This week, Amit Shah shares his story, learning his son’s diagnosis and how it has changed the meaning…
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Adult Patient Experiences – Scarred
Uncertainty and life challenges do not disappear with age. New phases of life, new experiences, instead, bring different ones our way, as Medical Student, Joe Burns, knows. Here, he shares with us a shift that happened in his life, after surgery as an adult due to his CHD. His story emphasizes the importance of support…
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Mother’s Day – Sarah’s Story
We don’t always celebrate Mother’s Day with a tangible gift. Sometimes the day serves as a reminder of the blessings that Motherhood is on its own. Below, Sarah shares her story about what Motherhood had taught her. There are so many valuable life lessons I have learned in my 8.5 years as a mother. Not only…
