Blog
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New Diagnosis – Brooke’s Story
This Week, Brooke Wilkerson shares the story of her son’s prenatal misdiagnosis, the correct diagnosis after birth, and the roller coaster of emotions the journey brought. “There’s something wrong with your baby’s heart.” “Just say it,” I thought, “Just tell me that there is something wrong so that I can mentally prepare myself for what’s…
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Brie Harrison
It was the strangest thing. Something I can’t fully explain. My entire pregnancy I had a feeling that something was different. Leading up to the 20 week scan I kept saying to my husband “I’m scared. What if something’s wrong!?! I feel like somethings wrong!”. Call it premonition, call it mother’s instinct, or simply coincidence…
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New Diagnosis – Pulse Oximetry
This week we will hear two perspectives on the benefits of pulse ox and the effort to make this non-invasive test a standard screening of newborns. Pulse Ox screening has made it possible to detect CHD in many newborns that would have otherwise gone home undiagnosed. This week’s contributions were provided by Dr. Gerard Martin, a…
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Jeremy Park
Jeremy was born on December 24, 2012, with Hypoplastic Left Heart Syndrome (HLHS). HLHS is a severe congenital heart defect where one side of the heart didn’t develop. In Jeremy’s case, his left ventricle, mitral valve, aortic valve, and aorta didn’t develop. HLHS requires three open heart surgeries to recreate the anatomy in order to…
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The House of Representatives is officially #CHDWise – IT PASSED!
Shortly after it’s initial passing into law in 2010, the Conquering CHD began hosting the Congenital Heart Legislative Conference – in partnership with the Children’s Heart Foundation and The Adult Congenital Heart Association – in efforts to ensure the Congenital Heart Futures Act is renewed in order to meet the needs of the changing CHD…
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Join our D.C Advocates and Participate from Home Today!
As you read this, nearly 200 fellow advocates are on Capitol Hill meeting with their Members of Congress as part of the 2018 Congenital Heart Legislative Conference. They are asking their lawmakers to support research, data collection, and awareness activities related to congenital heart disease (CHD). This includes recruitment of co-sponsors for the recently introduced Congenital Heart…
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Zipperstrong Project
As we continue through heart month, one amazing program, called Zipperstrong, helps honor families affected by CHD and their stories. The work done by photographer SheRae Hunter helps remind us all that even our scars can be beautiful. “I am the mommy of a child who is different. All I ever want…
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New Diagnosis – Jaclyn’s Story
This week, CCHD-OH Board Member, Jaclyn Frea shares the story of her miracle baby’s diagnosis with Tetralogy of Fallot. My husband Bryan and I were married on March 5, 2011 and we knew that immediately we wanted to start a family. Little did we know, getting pregnant would be a lot more difficult than we…
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Recap – Wellness
When living with chronic illness or caring for a chronically Ill child, it’s important to maintain a healthy lifestyle. CCHD’s Wellness Blog Series contributors offered tips on how to do it! The Most Wonderful Time Of Year The Holiday Season is meant to be filled with family and joy. It can also be a time…
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#CHDAware – Heart Month 2018
CHD Awareness Week has come to a close but there are still a few key ways to help us raise awareness through heart month and all year long! Participate in our Social Media campaign! Use your social media talents to shine and join the #CHDAware social media storm February 7-14, the entire community comes together…
