Blog
-
New Diagnosis – Baby Shower
When a mom -to-be receives a CHD diagnosis for her baby, questions and uncertainty swirl. Laura Carpenter shares, this week, how her baby’s Truncus Arteriosus diagnosis affected her perspective on baby showers. I remember reading an advice column many years ago. Someone was seeking guidance about her struggle to attend a friends baby shower…
-
New Diagnosis – Mary Beth’s Story, Diagnosed in Adulthood
We continue the New Diagnosis series with Mary Beth Meyers’ story. Diagnosed at the age of 23, Mary Beth shares how she had to put her dreams on hold due to an undetected CHD. In May of 2012, I was a newly graduated young woman, with hopes and dreams to begin working…
-
#CHDAware Fundraising Challenge 2018
Join our #CHDAware 2018 Fundraising Challenge to support our critical programs that help improve the lives of those living with CHD. We need YOU to help so we can reach our goal of $20,000. All you need to do is register as a fundraiser on our Challenge Page. While the fundraiser will be open all…
-
New Diagnosis – One Day At A Time, A Heart Mom’s Story
As we approach Heart Month CCHD begins its series on New Diagnosis. This week, Heart Mom Alexandra Frost shares with us the story of her daughter Emersynn’s diagnosis in utero and how she learned to take the news and life with CHD day by day. It all started when we went for our 12…
-
Lincoln Clay Shockey
Our son Lincoln was born on April 26, 2015 after a very eventful pregnancy. At 24 weeks, we found Lincoln’s CHD, Hypoplastic Left Heart Syndrome, after I developed a placental abruption and a multitude of other complications which put me onto hospital bedrest for the duration of the pregnancy. He was delivered in Louisville,…
-
Jeremiah Shanks
Jeremiah was born with a congenital heart defect. We found out at our 18 wk ultrasound that there was something wrong with his little heart. After multiple ultrasounds, many echos, transfer to the UK team, & then another transfer to Cincinnati, we gave birth to our otherwise healthy baby boy on August 4th. He was born…
-
Wellness – Balance
In the latest post in the Wellness Series, Megan Horsley, heart mom and Pediatric Dietitian at Cincinnati Children’s Hospital Medical Center, discusses how to find balance with your nutrition. Have you ever felt off balance? I am not specifically talking about when you were walking on a balance bean during gym class or gymnastics;…
-
Arrhythmias – Tachycardia Explained (Part Two)
Last week we discussed the issues that can cause the heart to beat too slow. This week, we look at what happens when the heart beats too fast. Carol Raimondi, completes part two of her resource on arrhythmias, this time covering tachycardia. Tachycardias There are many types of tachycardias, but here we will…
-
The Biggest Gift
After receiving a heart transplant, Megan Horton, a Texas Children’s staffer shares how she celebrates the biggest gift she’s ever received . Happy Holidays, Everyone! Twelve years ago, a family lost their daughter. Twelve years ago, a 17-year-old lost her best friend. Twelve years ago, friends, family and loved ones had to say…
