Blog
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Summit on Transparency and Public Reporting of Pediatric and Congenital Heart Disease Outcomes
Conquering CHD was thrilled to have the opportunity to host the recent Summit on Transparency and Public Reporting. Although, it is hard to capture the importance of this meeting on paper, below is a release summarizing the event. We are certain that you will continue to see the impact of this in weeks and months…
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Conquering CHD Fundraising Toolkit
“No one has ever become poor by giving.” – Anne Frank Welcome Welcome and Thank YOU for your interest in leading a fundraising event for Conquering CHD! We are so grateful for your efforts and support to conquer the most common birth defect. Please read the packet carefully and reach out to outreach@conqueringchd.org with any…
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“I am Conquering CHD.” You can, too!!
1000 advocates in 30 days. We can do this! Help us “Conquer CHD” Click here to become a member of CCHD’s advocate network, today! Why? We need you. Advocacy works. It has increased federal research funding. It has helped expand CHD data collection to include people of all ages. It has raised the transparency discussion to…
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Charting our future together: NHLBI’s Strategic Visioning Process
An announcement from the National Heart, Lung, and Blood Institute (NHLBI). Join the Conquering CHD in advocating for CHD research by sharing what you believe are the challenges facing children and adults with congenital heart disease. We encourage you to take a moment and participate: The National Heart, Lung, and Blood Institute (NHLBI) launched its…
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Legislative Champions – April Update
Conquering CHD, along with all of our amazing advocates, has been working hard to build legislative champions in Congress – lawmakers who have expressed an interest in CHD and have taken initiative by publicly supporting our issues. Legislative Champions Be sure to check out our updated List of Congenital Heart Legislative Champions! This list includes everyone who signed…
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ACE Kids Act – Better care for complex kids
Conquering CHD has offered endorsement and support of the Advancing Care for Exceptional Kids Act (ACE Kids Act) of 2015 (S. 298/H.R. 546) in a letter sent this week to the bill’s sponsors, Senators Grassley and Bennet and Representatives Barton and Castor. . Congenital heart disease (CHD) is the most common birth defect with nearly 1 in 100 babies…
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Advocacy Success: Children’s Health Coverage Extension Passes
Thank you to those of you who shared our action alert, called or emailed your members. Our friends at March Of Dimes said it best: Victory — Congress Passes Two Year CHIP Extension! Last night, the Senate voted 92-8 to extend funding for the Children’s Health Insurance Program (CHIP) through September 2017!…
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Support Children’s Health Care Coverage
Conquering CHD supports access to specialized care that is vitally necessary for children with CHD. CCHD strongly urges the Senate to support a four-year funding extension to the Children’s Health Insurance Program (CHIP), which provides quality health insurance for more than eight million children with families too high to qualify for Medicaid but too low…
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Can You Hear Me Now?
Guest Blogger Chris Perez knows first hand that even the littlest action can have a big impact. Conquering CHD offers many ways to get involved. Click on any of the following for more information or to get involved: volunteering, contacting your lawmakers, sharing your story. By working together, even the smallest of actions can help…
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Action Alert – Dear Colleague Letter
Thank you to those of you who sent an email to your member of Congress – our advocacy efforts are working – the Dear Colleague Letter in the House has reached 24 signatures! Now, we need to focus on the Senate! Send an email to your Senator, today. Building Champions for congenital…
