Blog
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HLHS Dad goes to Washington D.C.; Part 2
Chris Perez attended the Congenital Heart Legislative Conference on February 25-26, 2015. Here, he writes about the first day of this adventure. As the father of a child with a serious congenital heart defect, Chris regularly writes about his experiences in the CHD world on his blog: Half Heart. Whole Life. Read the first part of his story…
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Advocacy Works – Dear Colleague Letter
Thanks to the amazing efforts of advocates – great things are happening in D.C.! Senate Dear Colleague Letter: In fact – in direct response to a visit by his constituents, Senator Grassley has agreed to be the Republican Co-Author of the Senate Dear Colleague Letter with Senator Dick Durbin! We are expecting the letter to…
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HLHS Dad goes to Washington D.C.; Part 1
Chris Perez attended the Congenital Heart Legislative Conference on February 25-26, 2015. Here, he writes about the first day of this adventure. As the father of a child with a serious congenital heart defect, Chris regularly writes about his experiences in the CHD world on his blog: Half Heart. Whole Life. As Day 1 began to arrive it…
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Volunteer Opportunities
Be a part of something bigger. The mission of the Conquering CHD is to Conquer Congenital Heart Disease. We know that we cannot do it alone. CCHD is growing rapidly in size, reach and programming! We are forming several new volunteer parent/patient committees and need your help to make them a success. Getting involved is…
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New Legislative Champions Added
Congenital Heart Disease advocates from the Conquering CHD visited, emailed and called their legislators, yesterday asking the members of Congress to support CHD research and surveillance. Advocacy worked! We have already added new legislative champions to the list with new Caucus members and Dear Colleague Signers. Check out the Legislative Champions list to see if your’s…
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ACTION ALERT: A Community United for CHD
Encourage your members of Congress to support congenital heart disease research – call or email them, today. On February 26, 2015, congenital heart disease (CHD) advocates from across the country, representing more than 10 organizations are reaching out to their lawmakers to ask for three things: Provide $10.0 million in FY2016 to the Center for Disease…
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ACTION ALERT: Email Congress a Reception Invitation
Encourage your member of Congress to learn more about congenital heart disease. Invite them to attend the Congenital Heart Reception in conjunction with our Congenital Heart Legislative Conference. Send an email today to encourage your members to attend. Take action in three easy steps: 1) Find your legislator’s contact information. If this is your first…
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Webinar: 2015 Advocacy Update
Wondering what “advocacy” is all about? Can’t go to Washington D.C. but want to participate anyway? Interested in knowing what the Conquering CHD priorities are this year? Our 2015 Advocacy update will answer precisely those questions! 2015 Advocacy Update Tuesday, February 17th 7:30pm ET/6:30pm CT Click here to register Join us to learn more about the…
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Give From Your Heart
It’s February and most of us are thinking about hearts. Unfortunately, not enough folks are thinking about congenital heart defects. CCHD has been hard at work to change that. In just a few short weeks we will be co-hosting the Congenital Heart Legislative Conference in Washington D.C., where more than 100 advocates will visit their lawmakers and…
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Collaboration for Change
The American College of Cardiology recently hosted a Summit for providers in leadership positions to share information to improve their practice. CCHD was privileged to join Sisters By Heart in the opportunity to help educate these same amazing providers about building stronger relationships with their patients and parents through transparency and empathy. We experienced an incredibly…
