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Austin Thomas Erb
9.14.22-11.26.22 When we first learned that Austin would be admitted to Rocky Mountain Hospital for Children PICU for open heart surgery at 3 weeks old, we were nervous and anxious for what was ahead. However, nothing would truly prepare us for what the next 53 days would bring. The feeling of leaving your baby in…
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Addison Gutierrez
Hi my name is Addison Gutierrez! On June 21, 2008 my mom went in for a routine ultrasound. She had low amniotic fluid which meant that she had to have an emergency C section. My dad was a surgery resident at the hospital so he was able to meet her there. I was born at 35 weeks with…
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Summer Camp: Where Connection Makes a Splash
Summer camp. The very words conjure up images of bonfires, canoeing, and making lifelong friends. But for children with Congenital Heart Disease (CHD), the traditional camp experience might not be an option. Yet, the desire for connection, for belonging, remains just as strong. Thankfully, there are incredible summer camps designed specifically for kids with CHD….
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Congenital Heart Futures Reauthorization Act 2024
March 12, 2024 There’s positive news for the millions of Americans living with congenital heart disease (CHD) and their families. The Congenital Heart Futures Reauthorization Act (H.R. 7189) has successfully cleared a crucial hurdle by being marked up favorably by the House Energy and Commerce Health Subcommittee. This critical development signifies continued federal support for:…
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Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story
Chris was 15 years old when he decided that he wanted to be a firefighter. This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. But Chris was already pushing these boundaries…
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National Committees Are Back!
We have some fantastic news to share with all of you! After a hiatus, we are thrilled to announce the triumphant return of Conquering CHDs National Committees.
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How to Help Your Child Stay Still During Medical Imaging
Medical imaging plays an essential role in CHD care. However, for parents, the thought of their child undergoing medical imaging can be a source of stress and anxiety.
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Improving Access to Care for the LGBTQIA+ Community
Access to the necessary care is already a critical issue for teens and adults in the CHD community. But for members of the LGBTQIA+ Community, the added uncertainty over stigma can lead to inappropriate care and even avoidance of treatment altogether. In this week’s guest blog, Joseph Lindsey, a public health professional, discusses the hurdles…
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Return to Me & Accurate Representation of CHD in Entertainment
There’s always a bit of a thrill that comes with finding characters with CHD in a movie or a book. It’s an opportunity to our stories on screen, to know, somewhere in the world, thousands of people are reading about CHD. Some get it right, some are a bit off, but every effort to include…
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