1. Jace Reminds Us of Hope and Joy

    Jace, born in October 2021, arrived with a hefty challenge – Tetralogy of Fallot with Pulmonary Atresia and Double Outlet Right Ventricle, a mouthful for such a tiny fighter. At just 10 days old, he embarked on his first adventure: a complex heart repair at Columbia University Medical Center. Though the operation was a success,…

  2. Congenital Heart Futures Reauthorization Act 2024

    Today, U.S. Representatives Gus Bilirakis (R-FL) and Adam Schiff (D-CA), along with original cosponsors Representatives Tony Cardenas (D-CA), Buddy Carter (R-GA), María Elvira Salazar (R-FL), and Darren Soto (D-FL), introduced the Congenital Heart Futures Reauthorization Act of 2024 – a bipartisan bill that will authorize continued funding for congenital heart disease research and surveillance programs at the…

  3. Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story

    Chris was 15 years old when he decided that he wanted to be a firefighter. This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. But Chris was already pushing these boundaries…

  4. National Committees Are Back!

    We have some fantastic news to share with all of you! After a hiatus, we are thrilled to announce the triumphant return of Conquering CHDs National Committees.

  5. How to Help Your Child Stay Still During Medical Imaging

    Medical imaging plays an essential role in CHD care. However, for parents, the thought of their child undergoing medical imaging can be a source of stress and anxiety.

  6. Improving Access to Care for the LGBTQIA+ Community

    Access to the necessary care is already a critical issue for teens and adults in the CHD community. But for members of the LGBTQIA+ Community, the added uncertainty over stigma can lead to inappropriate care and even avoidance of treatment altogether. In this week’s guest blog, Joseph Lindsey, a public health professional, discusses the hurdles…

  7. Return to Me & Accurate Representation of CHD in Entertainment

    There’s always a bit of a thrill that comes with finding characters with CHD in a movie or a book. It’s an opportunity to our stories on screen, to know, somewhere in the world, thousands of people are reading about CHD. Some get it right, some are a bit off, but every effort to include…

  8. The VAD Life – One ACHDer Shares Her Experience with a Ventricular Assist Device

    After an extended hospital stay, Carol was still waiting for a heart. Her care team had a plan to get her home while she waited with the help of a ventricular assist device. Learn more about the device and Carol’s journey on the bridge to transplant. A Ventricular Assist Device, more commonly known as a…

  9. In the Spirit of Sankofa

    Dr. Josephine Isabel-Jones and Dr. Brenda Armstrong paved the way for generations to continue the legacy these women began in an era that tried to hold them back. As Black History Month comes to a close, Dr. Annette Ansong introduces us to these pioneers in the field of Pediatric Cardiology. In the Ghanaian language of…

  10. Advocacy for Kids: Virtual Conference 2021

    Conquering CHD’s annual advocacy conference in Washington, D.C. is virtual in 2021. Junior advocates can access recorded content, as well as printable materials, in lieu of attending the full virtual conference. Advocates ages 13+ are encouraged to attend the full virtual conference with a parent/guardian.

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