Blog
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Wellness – CHD and Exercise
With the brand new year, many of us are making resolutions to better ourselves and our lives. Exercising more is often at the top of the list! Kathleen Baschen, an exercise physiologist at Ann & Robert H. Lurie Children’s Hospital of Chicago, shares tips on how patients with CHD can get FITT. Your cardiologist suggests…
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The Biggest Gift
After receiving a heart transplant, Megan Horton, a Texas Children’s staffer shares how she celebrates the biggest gift she’s ever received . Happy Holidays, Everyone! Twelve years ago, a family lost their daughter. Twelve years ago, a 17-year-old lost her best friend. Twelve years ago, friends, family and loved ones had to say…
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Wellness – The Most Wonderful Time Of Year
The Holiday Season is meant to be filled with family and joy. It can also be a time of great stress, especially for families with chronically ill loved ones. In today’s post, Becky Hunt shares her experience with losing a child to CHD as well as managing her own illness, and explains how to de-stress…
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The Promise of Research for CHD, and Our Responsibility to Advocate
Advancement in standards of care and best practices can only happen with research. This week, Margaret King discusses the implications increased CHD research has on not only the community but society as a whole, as well as how important it is for each one of us to contact our representatives to increase research funding. …
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Patient Engagement Tool – The Care Partnership Pyramid
It is often difficult for parents and loved ones to know what to do in caring for their child during hospital stays, and it can often be a difficult topic to discuss. Christine Martinenza, RN, and Janie Klug, MSN, have implemented this month’s Patient Engagement Tool, The Care Partnership Pyramid, at Nemours/Alfred I. duPont Hospital for…
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Recap – Mental Health
We often shy away from discussing Mental Health, but in this series, patients share their stories and their struggles. We also hear from a psychotherapist, who has personal experience with CHD. Brittany’s Story, Living with PTSD Beyond Survival, the Struggle with Anxiety and Depression – by Sydney Taylor Courtney’s Story, A Mom’s Perspective Redefining “Of…
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Recap – Back to School
For tips and resources on how to advocate for your child in school and a Q&A with members of the CHD community on their school experiences, check out the links to the blogs below. Making a Difference – By Kyle Herma A Complete Resource Guide – By Kyle Herma Advocating for a Program – By…
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Recap – Heart Dad Series
Read about the Heart Dad take on caring for children with CHD and their wives’ tributes to them. Making the (Heart) World a Better Place The Immense Sky: Space to Deal, Space to Feel We Make a Good Team A Little Love Story Hero in a Small Package
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Recap – Donate Life Month
Read the stories of families affected by organ donation, those who received the gift of life and those who chose to share it. The Wait – By Bill Coon Becoming a Donor – By Jennifer Weiner The Call – By Kathleen Sheffer Choosing the Ultimate Gift – By Emily Inman An Extraordinary Miracle of Science –…
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Recap – National Reading Month
Check out some of our favorite reads in the posts from CCHD’s National Reading Month Series It’s My Heart Book – By The Children’s Heart Foundation A Q&A on Why We Love to Read , with Members of the CHD Community About “You’re Here for a Reason” – By Jessica Chenevert
