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The VAD Life – One ACHDer Shares Her Experience with a Ventricular Assist Device
After an extended hospital stay, Carol was still waiting for a heart. Her care team had a plan to get her home while she waited with the help of a ventricular assist device. Learn more about the device and Carol’s journey on the bridge to transplant. A Ventricular Assist Device, more commonly known as a…
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The Unsung Member of Our Care Team
When we think of our Cardiac Care Team, pharmacist doesn’t immediately come to mind. But the truth is they play a very important role in our care. This week’s blog comes to us from Dr. Ashley Schenk, Cardiac Pharmacist and adult with CHD. She shares just how much more than filling prescriptions there is to…
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Advocacy Conference 2021 Recap
Conquering CHD held its annual Advocacy Conference from March 1-2, 2021. Check out the meeting summary, follow-up reminders for advocates, and video messages from CHD Champions on Capitol Hill.
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CHD and Cancer: Is there a connection?
Is there a connection between congenital heart disease and cancer?
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Birth Defect Prevention & Awareness Month
Every January, Centers for Disease Control and Prevention (CDC) hosts National Birth Defects Prevention Month.
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Preventative Care is Essential During a Pandemic
Dr. Rema Merhi of Las Vegas, Nevada co-authors this post, sharing critical reminders for families of pediatric heart patients during the pandemic. While most of us are worried about COVID-19, parents of pediatric CHD patients are definitely worried. In fact, they are so worried, they are refraining from receiving essential preventative medical care during the…
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COVID-19 Vaccines & CHD: Town Hall Wrap-Up
Thank you to the patients and families who participated in our live Town Hall on January 20th, as part of our CHD Wise educational series. Read on for the summary and full video presentation.
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Wrapping Paper
I have never been good at surprises. Keeping anything a secret is nearly impossible for me. My kids have figured it out, too. If I leave a gift wrapped present out, they quickly begin guessing and if they are even remotely close, I have to run and hide for fear of giving it away. Just…