1. Congenital Heart Futures Reauthorization Act 2024

    March 12, 2024 There’s positive news for the millions of Americans living with congenital heart disease (CHD) and their families. The Congenital Heart Futures Reauthorization Act (H.R. 7189) has successfully cleared a crucial hurdle by being marked up favorably by the House Energy and Commerce Health Subcommittee. This critical development signifies continued federal support for:…

  2. Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story

    Chris was 15 years old when he decided that he wanted to be a firefighter. This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. But Chris was already pushing these boundaries…

  3. The VAD Life – One ACHDer Shares Her Experience with a Ventricular Assist Device

    After an extended hospital stay, Carol was still waiting for a heart. Her care team had a plan to get her home while she waited with the help of a ventricular assist device. Learn more about the device and Carol’s journey on the bridge to transplant. A Ventricular Assist Device, more commonly known as a…

  4. The Unsung Member of Our Care Team

    When we think of our Cardiac Care Team, pharmacist doesn’t immediately come to mind. But the truth is they play a very important role in our care. This week’s blog comes to us from Dr. Ashley Schenk, Cardiac Pharmacist and adult with CHD. She shares just how much more than filling prescriptions there is to…

  5. Advocacy Conference 2021 Recap

    Conquering CHD held its annual Advocacy Conference from March 1-2, 2021. Check out the meeting summary, follow-up reminders for advocates, and video messages from CHD Champions on Capitol Hill.

  6. CHD and Cancer: Is there a connection?

    Is there a connection between congenital heart disease and cancer?

  7. Birth Defect Prevention & Awareness Month

    Every January, Centers for Disease Control and Prevention (CDC) hosts National Birth Defects Prevention Month.

  8. Preventative Care is Essential During a Pandemic

    Dr. Rema Merhi of Las Vegas, Nevada co-authors this post, sharing critical reminders for families of pediatric heart patients during the pandemic. While most of us are worried about COVID-19, parents of pediatric CHD patients are definitely worried. In fact, they are so worried, they are refraining from receiving essential preventative medical care during the…

  9. COVID-19 Vaccines & CHD: Town Hall Wrap-Up

    Thank you to the patients and families who participated in our live Town Hall on January 20th, as part of our CHD Wise educational series. Read on for the summary and full video presentation.

  10. Wrapping Paper

    I have never been good at surprises.  Keeping anything a secret is nearly impossible for me.  My kids have figured it out, too.  If I leave a gift wrapped present out, they quickly begin guessing and if they are even remotely close, I have to run and hide for fear of giving it away.  Just…

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