Blog
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Key Tenets of Transparency
Working together to improve transparency, congenital heart programs, patients and families can improve outcomes and save lives. Congenital heart disease data may be complicated, but sharing information need not be so.
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Hospital Navigator: Advocacy, History & How To
Hospital Navigator is Conquering CHD’s newest resource for patients and families, and launched on August 5th, 2020. Advocacy Hospital Navigator works for all patients and families when all centers participate. And we need YOU to make it happen! Advocating for your center to join Hospital Navigator is as easy as 1-2-3: 1) Check the status…
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Guía para el cuidado de adultos con afección cardíaca congénita
La Afección cardíaca congénita (Congenital Heart Disease, CHD) es de por vida y los pacientes que nacen con CHD necesitan cuidados durante toda su vida basados en las indicaciones recomendadas. Sin embargo, alrededor del 50 % de los pacientes dejan de recibir cuidados después de los 13 años, y más del 60 % después de los 18….
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Transition Checklist – En Español
Cuando era un niño con chd probablemente tuvo alguien que lo ayudó con todo tipo de cosas relacionadas con la salud de su corazón y su impacto en la vida. A medida que crece, es importante que aprenda a hacer estas cosas solo.Esta lista de verificación de transición de Conquering CHD puede ayudarlo a pensar…
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Health Disparities Q&A
Conquering CHD held The Meeting on Health Disparities in Congenital Heart Disease on February 28, 2021. Due to time constraints not every question could be answered live. The expert panelists have provided answers below.
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Advocacy Conference 2021 Recap
Conquering CHD held its annual Advocacy Conference from March 1-2, 2021. Check out the meeting summary, follow-up reminders for advocates, and video messages from CHD Champions on Capitol Hill.
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Meeting on Health Disparities in Congenital Heart Disease: Listen. Learn. Act.
Conquering CHD hosted the Meeting on Health Disparities in Congenital Heart Disease, as part of their intentional efforts to advocate for all impacted by CHD.
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Las 10 Cosas Principales para Recordar Sobre la CHD Como Adulto
Sabemos que hay muchas cosas con las que hacer malabares como adulto que vive con CHD. Puede ser difícil organizar todo por lo que creamos esta práctica hoja de trucos con una lista de las 10 cosas más importantes para recordar. El póster imprimible de este recurso disponible aqui 1. Su cardiopatía congénita requiere cuidados…
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Guided Questions Tool – ACHD Edition
Ask these important questions to your care team. ACHD En Español / Pediatric versions of this resource available. QUESTIONS TO ASK YOUR CARDIAC TEAM Congenital Heart Disease (CHD) is a lifelong condition which requires lifelong care in an Adult Congenital Heart Disease (ACHD) Program. Only about 10% of Adults with CHD are seen in ACHD…
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Advocacy for Kids: Virtual Conference 2021
Conquering CHD’s annual advocacy conference in Washington, D.C. is virtual in 2021. Junior advocates can access recorded content, as well as printable materials, in lieu of attending the full virtual conference. Advocates ages 13+ are encouraged to attend the full virtual conference with a parent/guardian.
