Blog

1. 

   Guía Para el Cuidado Futuro de su Hijo

   February 19th, 2021 by Jessica Chenevert

   Posted in Education

   La Afección cardíaca congénita (Congenital Heart Disease, CHD) es de por vida y los pacientes que nacen con CHD necesitan cuidados durante toda su vida basados en las indicaciones recomendadas. Sin embargo, alrededor del 50 % de los pacientes dejan de recibir cuidados después de los 13 años, y más del 60 % después de los 18….

2. 

   Top 10 Things to Remember about CHD as an Adult

   February 17th, 2021 by Jessica Chenevert

   Posted in Awareness, Education

   When you’re living with CHD, there is a lot to remember about managing your care. Our Top 10 List of Things to Remember makes a handy cheat sheet to help keep you on track! This resource is also available as a printable poster. 1. Your Congenital Heart Disease requires lifelong care 2. Keep your records…

3. 

   Connections: CHD and Down syndrome

   February 17th, 2021 by Jessica Chenevert

   Posted in Advocacy, Awareness, Education

   The most common birth defect and the most common genetic syndrome have a strong connection.

4. 

   CHD and Cancer: Is there a connection?

   February 4th, 2021 by Jessica Chenevert

   Posted in Education

   Tags: ACHD, CHD, chd and cancer, most common birth defect

   Is there a connection between congenital heart disease and cancer?

5. 

   Cuestionario de Preguntas Guiadas – Edición ACHD

   February 1st, 2021 by Jessica Chenevert

   Posted in Education

   PREGUNTAS PARA HACERLE A SU EQUIPO CARDÍACO

6. 

   Cuestionario de Preguntas Guiadas

   February 1st, 2021 by Jessica Chenevert

   Posted in Education

   Preguntas Para El Equipo Cardíaco

7. 

   Transferencia Del Cuidado a un Nuevo Equipo

   February 1st, 2021 by Jessica Chenevert

   Posted in Education

   ¿Está comenzando el cuidado necesario para adultos con afección cardíaca congénita (Adult Congenital Heart Disease, ACHD) por primera vez o se retira de su centro actual? Encontrar un nuevo equipo y superar la primera visita con un médico nuevo puede ser difícil. Aquí le presentamos algunos pasos para que considere al comenzar a elegir su…

8. 

   Transferring Care to a New Team

   January 29th, 2021 by Jessica Chenevert

   Posted in Development, Education

   Are you starting Adult Congenital Heart Disease (ACHD) care for the first time or moving away from your current center? Finding a new team and getting through your first visit with a new doctor can be challenging. Here are some steps to consider as you begin choosing your new care team, prepare for your first…

9. 

   Birth Defect Prevention & Awareness Month

   January 27th, 2021 by Jessica Chenevert

   Posted in Advocacy, Awareness, Education

   Tags: ACHD, birth defect advocacy, birth defect awareness, birth defect prevention, CDC, centers for disease control, CHD, chd advocacy, chd awareness, chd education, chd support, Conquering CHD, most common birth defect

   Every January, Centers for Disease Control and Prevention (CDC) hosts National Birth Defects Prevention Month.

10. 

    Guide to Your ACHD Care

    January 25th, 2021 by Jessica Chenevert

    Posted in Education

    Congenital Heart Disease (CHD) is lifelong, and patients born with CHD need lifelong care based on the recommended guidelines. However, nearly 50% of patients stop getting care after age 13, and more than 60% after age 18. It is important to know what care you need now and what care you will need in the…