Blog
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The Grenier Family
As young women with CHD, female patients are often cautioned against the idea of pregnancy, as they start to explore the idea of building a family. This October, we will hear from strong, CHD warrior women, as they share their miracle birth stories. Today, Anik Grenier shares the journey she and her husband took to create…
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The Joy Siblings
This week we are continuing to explore how CHD affects our siblings. Johnathan shares how his sister Abbigail, has affected his perspective on life, and the lessons he has learned from her. My sister Abbigail was born with heart defects in 2008 and passed away at two months old. At first it didn’t affect…
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Lauren and Korrin
This 3rd week of September, we share another special sibling story. Today we hear from Korrin Wells, a sibling who just happens to be that of our Blog Coordinator! Korrin discusses how CHD has affected her, and the lessons it has to offer. As a child growing up with an older sister with CHD, one of…
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The Weiner Siblings
This week, we continue to hear from our siblings and how growing up with a CHD warrior has affected their lives. Today, we share an interview given by Jeff and Jessica Weiner, siblings of Jennifer Weiner, our former blog coordinator and current Lead ACHD Volunteer. Their thoughts come to you through a podcast hosted by…
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Amy and Gretta
On this holiday weekend, we are beginning our series on Siblings. We will be dedicating the September theme to their stories, their journey with CHD . Our siblings voices are not often heard through the the chaos that can come with appointments and procedures, but CHD takes its toll on them as well. This week,…
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Social Security Disability Benefits – Adults
Qualifying for Social Security Disability Benefits as an Adult with CHD Tens of thousands of adults are thriving with congenital heart defects. While many are able to live full lives, it’s possible that at some point your heart function will decrease and you’re unable to maintain employment. If you’re no longer able to work due…
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A Social Worker’s Perspective on Medical Bills
We’re taking a look at how we can better gear up for the financial stress that will come our way when paying for CHD. We will analyze the topic through the eyes of Akina Takahashi, a Heart Center Social Worker. She offers us great advice on how to work with various professionals and organizations to…
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School Intervention Series: A Complete Resource Guide
CCHD welcomes back Kyle Herma, School Intervention Specialist at Children’s Hospital of Wisconsin School. Today, we re-share Kyle’s wealth of information on navigating a school’s system without a dedicated school liaison. Her complete resource list is included at the end of this post for easy reference. 2020 Update: School with CHD during COVID?! We’ve got you…
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Congenital Heart Disease in an Era of High Deductible Health Plans
Here’s a fantastic post written by Mr. Kinney of the Herma Heart Institute, on how patients and families can gain a little piece of mind and take control when the medical bills are rolling in. The journey of CHD can be overwhelming in many different ways, and medical bills is a huge component of that….
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Social Security Disability Benefits – Children
Last week, we heard a patient’s story on the financial difficulties and challenges that come with CHD. This week we hear from another heart warrior, who comes with a hopeful message. Deanna Power shares her expertise with CCHD, and how patients of all ages may qualify for SSI. If your child has a congenital heart…
