Blog
-
The Ways we Pay for CHD
The theme for August is finances, and how the families affected by CHD pay for all the healthcare that goes into a CHD patient. This month we will be sharing stories and advice from people of all walks of life who come with many different perspectives. This week we will hear from a patient who…
-
5 Ways Heart Families Beat the Summer Heat
The summertime sunshine can be a welcome treat after a long winter, but it can also be dangerous. Many people with complex CHD have difficulty tolerating the summer heat. CCHD recently asked the CHD Community, families, and patients to share what they do to beat the heat. This is what they had to say! …
-
A 2nd Opinion: Finding the Right Care
Although we know it’s not Thursday, this week we’re doing a throwback! We are always working on improving the transparency between patients, and the doctors. In our continuing conversation of transparency, please read this family’s story in navigating the difficulties of finding the right care for their little boy, John… Spoiler alert, there’s a happy…
-
Taking a Break for Fun: Summer Possibilities with Margaret King
This week we are continuing with the theme of summer fun! Today we’ll hear from Margaret King, a Heart Mom, who spends her summer hanging out with her fun-loving son. In the CHD life, sometimes it’s hard to get a break. While summer brings a brief reprieve from school expectations and IEP goals, we…
-
Summer Fun! – Laura’s Adventures with CHD at Camp Odayin
For the month of July, we are bringing you stories of how CHD families enjoy the summer, along with tips and tricks on how CHD patients can beat the heat. To kick us off for the month we have Laura Hoagland, an adult CHD patient and avid adventurer. Laura shares her experience with Camp Odayin,…
-
Father’s Day – A Heart Dad How-To
For Heart Dads new to CHD, feeling a little lost, or those not sure where they fit in the CHD world, Aaron Carpenter shares what he found, after 8 years on the CHD roller coaster, worked best for him and his family. His tips just might help you too! I am the dad of two…
-
Father’s Day – I See You, Heart Dad
Often times, Heart Dads do the behind the scenes work, the work that the world can’t see. Yet, in truth, their job as dad, their love, their encouragement and concern doesn’t go unnoticed by the ones that matter. Diana Schneider shares with us just how special a role her husband plays in their family and…
-
Father’s Day – Joe’s Dad
In May, CCHD honored Heart Moms for Mother’s Day. This month, we’re taking time to shine a light on the great Heart Dads out there, who conquer CHD along side us and are often unsung in the fight. This week, Joe Valente, an adult CHD patient, thanks his dad for the sacrifices he made a…
-
Mother’s Day – A Mother’s Day Gift
Mother’s Day is a day to shower the women that have loved us and cared for us with gifts in appreciation! We bring them flowers and homemade cards, in hopes of bringing a smile to their faces. But last Mother’s Day, Melissa Zolk received a very different kind of gift, one that changed her daughter,…
-
Beyond the Heart – Nauman’s Story
Adult patient and medical student, Nauman Shahid, shares what he learned about the way different body systems interact with one another through Medical School and personal experience. Here, he shares the complications that developed with his lungs as a result of his Congenital Heart Disease.
